The kidney cancer research priority-setting partnership: Identifying the top 10 research priorities as defined by patients, caregivers, and expert clinicians

被引：26

作者：

Jones, Jennifer ^{[1
,2
]}

Bhatt, Jaimin ^{[3
,4
,5
]}

Avery, Jonathan ^{[6
]}

Laupacis, Andreas ^{[7
]}

Cowan, Katherine ^{[8
]}

Basappa, Naveen ^{[9
]}

Basiuk, Joan ^{[10
]}

Canil, Christina ^{[11
]}

Al-Asaaed, Sohaib ^{[12
]}

Heng, Daniel ^{[13
,14
]}

Wood, Lori ^{[15
]}

Stacey, Dawn ^{[16
,17
]}

Kollmannsberger, Christian ^{[18
,19
]}

Jewett, Michael A. S. ^{[3
,4
,5
]}

机构：

[1] Univ Hlth Network, Princess Margaret Canc Ctr, Ctr Rehabil & Survivorship Program, Toronto, ON, Canada

[2] Univ Toronto, Dept Psychiat, Toronto, ON, Canada

[3] Univ Hlth Network, Princess Margaret Canc Ctr, Div Urol, Dept Surg, Toronto, ON, Canada

[4] Univ Hlth Network, Princess Margaret Canc Ctr, Div Urol, Dept Surg Oncol, Toronto, ON, Canada

[5] Univ Toronto, Toronto, ON, Canada

[6] Univ Ottawa, Sch Rehabil Sci, Ottawa, ON, Canada

[7] St Michaels Hosp, Li Ka Shing Knowledge Inst, Toronto, ON, Canada

[8] James Lind Alliance, Southampton, Hants, England

[9] Univ Alberta, Dept Oncol, Edmonton, AB, Canada

[10] Kidney Canc Res Network Canada, Toronto, ON, Canada

[11] Univ Ottawa, Div Med Oncol, Dept Internal Med, Ottawa, ON, Canada

[12] Mem Univ Newfoundland, Dr H Bliss Murphy Canc Ctr, Dept Med Oncol, St John, NF, Canada

[13] Univ Calgary, Dept Med Oncol, Calgary, AB, Canada

[14] Tom Baker Canc Clin, Calgary, AB, Canada

[15] Dalhousie Univ, Dept Urol, Div Med Oncol, Halifax, NS, Canada

[16] Sch Nursing, Fac Hlth Sci, Ottawa, ON, Canada

[17] Ottawa Hosp Res Inst, Ottawa, ON, Canada

[18] Univ British Columbia, Med Oncol, Vancouver, BC, Canada

[19] Med Oncol BC Canc Agcy, Vancouver, BC, Canada

来源：

CUAJ-CANADIAN UROLOGICAL ASSOCIATION JOURNAL | 2017年 / 11卷 / 12期

基金：

加拿大健康研究院;

关键词：

RENAL-CELL CARCINOMA; DIAGNOSTIC-ACCURACY; DECISION-MAKING; TUMOR-BIOPSY; MASS BIOPSY; RISK; BIOMARKERS; EVEROLIMUS; IMMUNOTHERAPIES; HETEROGENEITY;

D O I：

10.5489/cuaj.4590

中图分类号：

R5 [内科学]; R69 [泌尿科学（泌尿生殖系疾病）];

学科分类号：

1002 ; 100201 ;

摘要：

It is critically important to define disease-specific research priorities to better allocate limited resources. There is growing recognition of the value of involving patients and caregivers, as well as expert clinicians in this process. To our knowledge, this has not been done this way for kidney cancer. Using the transparent and inclusive process established by the James Lind Alliance, the Kidney Cancer Research Network of Canada (KCRNC) sponsored a collaborative consensus-based priority-setting partnership (PSP) to identify research priorities in the management of kidney cancer. The final result was identification of 10 research priorities for kidney cancer, which are discussed in the context of current initiatives and gaps in knowledge. This process provided a systematic and effective way to collaboratively establish research priorities with patients, caregivers, and clinicians, and provides a valuable resource for researchers and funding agencies.

引用

页码：379 / 387

页数：9

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