Validation of Autism Spectrum Disorder Diagnoses in Large Healthcare Systems with Electronic Medical Records

被引：72

作者：

Coleman, Karen J. ^{[1
]}

Lutsky, Marta A. ^{[2
]}

Yau, Vincent ^{[2
]}

Qian, Yinge ^{[2
]}

Pomichowski, Magdalena E. ^{[1
]}

Crawford, Phillip M. ^{[3
]}

Lynch, Frances L. ^{[3
]}

Madden, Jeanne M. ^{[4
,5
]}

Owen-Smith, Ashli ^{[6
]}

Pearson, John A. ^{[3
]}

Pearson, Kathryn A. ^{[3
]}

Rusinak, Donna ^{[4
,5
]}

Quinn, Virginia P. ^{[1
]}

Croen, Lisa A. ^{[2
]}

机构：

[1] Kaiser Permanente So Calif, Dept Res & Evaluat, Pasadena, CA 91104 USA

[2] Kaiser Permanente No Calif, Div Res, Oakland, CA USA

[3] Kaiser Permanente Northwest, Ctr Hlth Res, Portland, OR USA

[4] Harvard Univ, Sch Med, Boston, MA USA

[5] Harvard Pilgrim Healthcare Inst, Boston, MA USA

[6] Kaiser Permanente Georgia, Ctr Hlth Res, Atlanta, GA USA

来源：

JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS | 2015年 / 45卷 / 07期

关键词：

Population-based; Racial/ethnic minorities; Chart review; Children; Adolescents; SURVEILLANCE;

D O I：

10.1007/s10803-015-2358-0

中图分类号：

B844 [发展心理学（人类心理学）];

学科分类号：

040202 ;

摘要：

To identify factors associated with valid Autism Spectrum Disorder (ASD) diagnoses from electronic sources in large healthcare systems. We examined 1,272 charts from ASD diagnosed youth < 18 years old. Expert reviewers classified diagnoses as confirmed, probable, possible, ruled out, or not enough information. A total of 845 were classified with 81 % as a confirmed, probable, or possible ASD diagnosis. The predictors of valid ASD diagnoses were > 2 diagnoses in the medical record (OR 2.94; 95 % CI 2.03-4.25; p < 0.001) and being male (OR 1.51; 95 % CI 1.05-2.17; p = 0.03). In large integrated healthcare settings, at least two diagnoses can be used to identify ASD patients for population-based research.

引用

页码：1989 / 1996

页数：8

共 50 条

[21] Disparities in Diagnoses Received Prior to a Diagnosis of Autism Spectrum Disorder
David S. Mandell
Richard F. Ittenbach
Susan E. Levy
Jennifer A. Pinto-Martin
Journal of Autism and Developmental Disorders, 2007, 37 : 1795 - 1802
[22] Stability of Initial Autism Spectrum Disorder Diagnoses in Community Settings
Amy M. Daniels
Rebecca E. Rosenberg
J. Kiely Law
Catherine Lord
Walter E. Kaufmann
Paul A. Law
Journal of Autism and Developmental Disorders, 2011, 41 : 110 - 121
[23] Trends in Autism Spectrum Disorder Diagnoses: 1994-2007
Rosenberg, Rebecca E.
Daniels, Amy M.
Law, J. Kiely
Law, Paul A.
Kaufmann, Walter E.
JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS, 2009, 39 (08) : 1099 - 1111
[24] 'Are you by chance on the spectrum?' Adolescents with autism spectrum disorder making sense of their diagnoses
Jones, Jennifer L.
Gallus, Kami L.
Viering, Kacey L.
Oseland, Lauren M.
DISABILITY & SOCIETY, 2015, 30 (10) : 1490 - 1504
[25] Timing of the Diagnoses of Attention Deficit Hyperactivity Disorder and Autism Spectrum Disorder in Taiwan
Wei, Han-Ting
Hsu, Ju-Wei
Huang, Kai-Lin
Bai, Ya-Mei
Su, Tung-Ping
Li, Cheng-Ta
Lin, Wei-Chen
Tsai, Shih-Jen
Pan, Tai-Long
Chen, Tzeng-Ji
Chen, Mu-Hong
JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS, 2021, 51 (03) : 790 - 797
[26] Timing of the Diagnoses of Attention Deficit Hyperactivity Disorder and Autism Spectrum Disorder in Taiwan
Han-Ting Wei
Ju-Wei Hsu
Kai-Lin Huang
Ya-Mei Bai
Tung-Ping Su
Cheng-Ta Li
Wei-Chen Lin
Shih-Jen Tsai
Tai-Long Pan
Tzeng-Ji Chen
Mu-Hong Chen
Journal of Autism and Developmental Disorders, 2021, 51 : 790 - 797
[27] Development of a phenotype ontology for autism spectrum disorder by natural language processing on electronic health records
Mengge Zhao
James Havrilla
Jacqueline Peng
Madison Drye
Maddie Fecher
Whitney Guthrie
Birkan Tunc
Robert Schultz
Kai Wang
Yunyun Zhou
Journal of Neurodevelopmental Disorders, 2022, 14
[28] Development of a phenotype ontology for autism spectrum disorder by natural language processing on electronic health records
Zhao, Mengge
Havrilla, James
Peng, Jacqueline
Drye, Madison
Fecher, Maddie
Guthrie, Whitney
Tunc, Birkan
Schultz, Robert
Wang, Kai
Zhou, Yunyun
JOURNAL OF NEURODEVELOPMENTAL DISORDERS, 2022, 14 (01)
[29] Examining the Healthcare Experience of Individuals with Autism Spectrum Disorder
Fossi, Alexander
Rossi, Wendy
JOURNAL OF DEVELOPMENTAL AND BEHAVIORAL PEDIATRICS, 2021, 42 (02): : S20 - S20
[30] Autism spectrum disorder and complex healthcare needs: The role of healthcare experiences
Parker, M. L.
Killian, Michael
RESEARCH IN AUTISM SPECTRUM DISORDERS, 2020, 73

← 1 2 3 4 5 →