The Post-Roe Political Landscape Demands a Morality of Caution for Women's Health

被引:3
|
作者
Goodday, Sarah [1 ,2 ]
Karlin, Daniel [1 ,3 ,4 ]
Suver, Christine [5 ]
Friend, Stephen [1 ,2 ]
机构
[1] 4YouandMe, 2901 Third Ave,Ste 330, Seattle, WA 98121 USA
[2] Univ Oxford, Dept Psychiat, Oxford, England
[3] Tufts Univ, Sch Med, Dept Psychiat, Boston, MA 02111 USA
[4] MindMed Inc, New York, NY USA
[5] Sage Bionetworks, Seatlle, WA USA
关键词
women's health; reproductive health; wearable; abortion rights; confidentiality and privacy; Roe v. Wade; health policy; health research; reproductive information; privacy; women's rights; health rights; abortion; eHealth; digital health; mHealth; safety; ethic;
D O I
10.2196/41417
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
The recent Supreme Court decision (ie, Dobbs v. Jackson Women's Health Organization), revoking the constitutional right to abortion in the United States, has the potential to dramatically disrupt progress in women's health research. The typical safeguards to ensure confidentiality and privacy of research participants in studies that collect certain types of personal health information may not hold against criminal investigations surrounding suspected pregnancy terminations. There are additional risks to participants in digital health research studies involving the use of wearable devices capable of tracking physiological measures, such as body temperature and heart rate, as these have shown promise for tracking conception and could be used to identify pregnancy termination signatures. There are strategies researchers can use to protect the safety of participants in health research who could get pregnant, while also maintaining integrity of research methods. The objective of this viewpoint is to discuss potential strategies to protect research participants' privacy that include the minimization of nonessential sensitive personal health information and anonymization protocols in the event of miscarriage or termination of pregnancy. We invite others to join this discussion so as to not let the current political landscape impede progress in women's health and reproductive research, while also protecting research participants.
引用
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页数:4
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