Quality of Life of Primary Brain Tumor Patients Before and 3 Months After Discharge from a Hospital in Bandung, Indonesia

Background: The quality of life of patients with primary brain tumor in Indonesia is poorly understood. Therefore, this study aimed to investigate the health-related quality of life of patients admitted to the Neurosurgery Department of Dr. Hasan Sadikin Hospital, Bandung, Indonesia, up to 3 months after discharge. Methods: Baseline data were collected from patients aged >= 18 years who were admitted to the hospital between October 9, 2015, and February 17, 2016. In-person interviews were then conducted 1-2 days pre-discharge (n = 65) and follow-up telephone interviews were made 1, 2, and 3 months post-discharge (n = 58, 55, and 54, respectively) to collect socio-demographic data, clinical characteristics, and EQ-5D-5L data. Results: Prior to discharge, one-third or less of the 65 patients interviewed reported "no problems" with mobility (32%), self-care (32%), usual activities (18%), and pain/discomfort (43%), whereas 74% reported "no problems" with anxiety/depression. By contrast, at 3 months post-discharge, an increased proportion of patients reported "no problems" with mobility (61%), self-care (67%), usual activities (56%), and pain/discomfort (76%), with little change in anxiety/depression ("no problems" 70%). Conclusions: While there was improvement, many patients were still reporting problems at 3 months post-discharge, highlighting the need for ongoing support and care to ensure the best possible outcomes.