Qualitative study of self-reported experiences of infertile women with polycystic ovary syndrome through on-line discussion forums

被引：15
|
作者：
Authier, Magali [1 ]
Normand, Caroline [1 ]
Jego, Maeva [1 ]
Gaborit, Benedicte [2 ]
Boubli, Leon [3 ]
Courbiere, Blandine [3 ,4 ]
机构：
[1] Aix Marseille Univ, Fac Sci Med & Paramed Timone, Dept Med Gen, 27 Blvd Jean Moulin, F-13385 Marseille, France
[2] Aix Marseille Univ, AP HM, Dept Endocrinol Diabet & Malad Metab, INSERM,INRA,C2VN, Marseille, France
[3] Hop La Conception, Hop Nord, AP HM, Pole Femmes Parents Enfants,Ctr Clin Biol AMP CEC, 147 Blvd Bailie, F-13005 Marseille, France
[4] Avignon Univ, Aix Marseille Univ, CNRS, IRD,IMBE, Marseille, France
来源：
ANNALES D ENDOCRINOLOGIE | 2020年 / 81卷 / 05期
关键词：
PCOS; Polycystic ovary syndrome; Infertility; Experience; Forums; PREVALENCE; CRITERIA; SUPPORT; CANCER; WEB;
D O I：
10.1016/j.ando.2020.07.1110
中图分类号：
R5 [内科学];
学科分类号：
1002 ; 100201 ;
摘要：
Objectives. - To highlight the self-reported experiences and disease perceptions of infertile women with polycystic ovary syndrome (PCOS). Methods. - A qualitative study using an inductive method was conducted on infertile women with PCOS who shared their self-reported experiences on French-speaking on-line forums. Results. - 785 comments by 211 women on 7 forums were analyzed. Women complained of late diagnosis and lack of information regarding PCOS. PCOS and infertility showed negative psychological impact on daily life. This impact appeared to be alleviated by the sharing of knowledge and experience enabled by these forums. Conclusion. - The self-reported experience of infertile women with PCOS is interesting for health practitioners. The psychological impact of PCOS and perceptions of illness appear to be improved by sharing experiences between women with PCOS, suggesting a beneficial support role of online discussion forums. (C) 2020 Elsevier Masson SAS. All rights reserved.
引用
收藏
页码：487 / 492
页数：6
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