The dyadic self-care experience of stroke survivors and their caregivers: A qualitative descriptive study

被引:4
|
作者
Wang, Wenna [1 ,2 ]
Pucciarelli, Gianluca [3 ]
Mei, Yongxia [2 ]
Zhang, Zhenxiang [2 ,5 ]
Vellone, Ercole [3 ,4 ]
机构
[1] Zhengzhou Univ, Acad Med Sci, Zhengzhou, Henan, Peoples R China
[2] Zhengzhou Univ, Sch Nursing & Hlth, Zhengzhou, Henan, Peoples R China
[3] Univ Roma Tor Vergata, Dept Biomed & Prevent, Rome, Italy
[4] Wroclaw Med Univ, Dept Nursing & Obstet, Wroclaw, Poland
[5] Zhengzhou Univ, Sch Nursing & Hlth, 100 Kexue Ave, Zhengzhou 450001, Henan, Peoples R China
基金
中国国家自然科学基金;
关键词
caregiver; dyadic; experience; family-centred care; qualitative study; self-care; stroke; GLOBAL BURDEN; MANAGEMENT; UPDATE;
D O I
10.1111/hex.13838
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
BackgroundPromoting self-care is the core response strategy of the global health system to the burden of stroke. Although self-care in stroke represents a dyadic phenomenon, the dyadic self-care experience of stroke survivors and their caregivers is often overlooked in clinical practice. ObjectivesThe aim of this study was to explore the dyadic self-care experience of stroke survivors and their caregivers. DesignA descriptive qualitative design was used to conduct the study. ResultsThe Consolidated Criteria for Reporting Qualitative Research was used for study reporting. A total of 21 stroke survivor-caregiver dyads were recruited for this study between May 2022 and September 2022. Data were collected through semistructured interviews and analyzed using thematic analysis. In this study, four themes were identified: (1) poor relationship quality of the dyads, (2) dyadic incongruence in managing stroke, (3) a slow and tiring dyadic self-care process and (4) happy cooperation in coping with dyadic self-care. Discussion and ConclusionHealthcare professionals should give greater consideration to the contradictions and disparities that may arise between stroke survivors and caregivers during the self-care process. It is crucial for them to provide personalized and tailored support and interventions that can assist these individuals in achieving a more optimal balance in their dyadic self-care. Patient/Public ContributionPatients were involved in the formulation of interview questions for this study. No members of the public were involved in this study.
引用
收藏
页码:2325 / 2339
页数:15
相关论文
共 50 条
  • [41] Employing foreign caregivers: A qualitative study of the perspectives of older stroke survivors
    Lin, Yen-Nung
    Mauludina, Yosika Septi
    Fields, Beth E.
    Liou, Tsan-Hon
    Su, Yu
    Tsai, Han-Ting
    Chang, Feng-Hang
    PLOS ONE, 2025, 20 (01):
  • [42] PSYCHOSOCIAL PREDICTORS OF POST-STROKE SELF-CARE AMONG UNDERSERVED STROKE SURVIVORS
    Robertson, S.
    Bush, A.
    Huddleston, C.
    Porter, B.
    Evans, G.
    GERONTOLOGIST, 2013, 53 : 307 - 307
  • [43] CAREGIVERS' EXPERIENCE IN MEETING SELF-CARE NEEDS OF ADOLESCENTS WITH AUTISM SPECTRUM DISORDER: A QUALITATIVE STUDY (vol 3, pg 316, 2017)
    Lestari, Lilis
    Herini, Elisabeth. S.
    Gamayanti, Indria Laksmi
    BELITUNG NURSING JOURNAL, 2020, 6 (04) : 146 - 146
  • [44] Grief and Loss Associated With Stroke Recovery: A Qualitative Study of Stroke Survivors and Their Spousal Caregivers
    Hughes, Anne K.
    Cummings, Cristy E.
    JOURNAL OF PATIENT EXPERIENCE, 2020, 7 (06): : 1219 - 1226
  • [45] Impact of Stroke on Quality of Life of Stroke Survivors and Their Caregivers: A Qualitative Study from India
    Tiwari, Sharad
    Joshi, Ankur
    Rai, Nirendra
    Satpathy, Parmeshwar
    JOURNAL OF NEUROSCIENCES IN RURAL PRACTICE, 2021, 12 (04) : 680 - 688
  • [46] Dyadic Archetypes of Patient Self-Care and Caregiver Contribution to Self-Care in Dyads With Multiple Chronic Conditions: An Observational Study
    De Maria, Maddalena
    Lee, Christopher S. S.
    Matarese, Maria
    Vellone, Ercole
    Lorini, Silvia
    Ausili, Davide
    JOURNAL OF APPLIED GERONTOLOGY, 2023, 42 (08) : 1809 - 1819
  • [47] Experiencing creativity as self-care for caregivers
    Rykov, MH
    JOURNAL OF PALLIATIVE CARE, 2002, 18 (03) : 224 - 224
  • [48] Contributing to self-care of a person with chronic obstructive pulmonary disease: A qualitative study of the experiences of family caregivers
    Pendoni, Roberta
    Albanesi, Beatrice
    Clari, Marco
    Pecorari, Giulia
    Matarese, Maria
    JOURNAL OF ADVANCED NURSING, 2024, 80 (05) : 1927 - 1942
  • [49] Self-care of patients during hemodialysis: A qualitative study
    Siregar, Cholina Trisa
    Nasution, Siti Zahara
    Zulkarnain
    Ariga, Reni Asmara
    Lufthiani
    Harahap, Ikhsanuddin Ahmad
    Tanjung, Dudut
    Rasmita, Dina
    Ariadni, Dwi Karina
    Bayhakki
    Harahap, M. Pahala Hanafi
    ENFERMERIA CLINICA, 2021, 31 (S 4): : 5588 - 5592
  • [50] Self-care demands in water birth: a qualitative study
    de Camargo, Joyce da Costa Silveira
    de Albuquerque, Rosemeire Sartori
    Osawa, Ruth Hitomi
    Correa, Edna Evelin da Costa Silveira
    Lavieri, Edna Cardoso
    Nene, Manuela
    Grande, Maria Catarina Leite Rodrigues
    ACTA PAULISTA DE ENFERMAGEM, 2023, 36