共 50 条
Experiences of Peer Communities in a Cancer Smartphone App Among Adolescents and Young Adults With Cancer
被引:2
|作者:
Hanghoj, Signe
[1
]
Bentsen, Line
[1
]
Hjerming, Maiken
[2
]
Simonsen, Anette Borup
[3
]
Thycosen, Marianne
[4
]
Bergmann, Mette Buur
[5
]
Godiksen, Dorthe Ostergaard
[6
]
Pappot, Helle
[1
]
机构:
[1] Copenhagen Univ Hosp, Dept Oncol, Rigshosp, Copenhagen, Denmark
[2] Copenhagen Univ Hosp, Dept Hematol, Rigshosp, Copenhagen, Denmark
[3] Aarhus Univ Hosp, Dept Hematol, Aarhus, Denmark
[4] Odense Univ Hosp, Dept Oncol, OUH, Odense, Denmark
[5] Zealand Univ Hosp, Dept Hematol, Roskilde, Denmark
[6] Aalborg Univ Hosp, Dept Hematol, Aalborg, Denmark
关键词:
App;
AYA;
Cancer;
Community;
Peer-to-peer;
Psychosocial;
Qualitative;
SOCIAL MEDIA;
SUPPORT;
ONLINE;
SURVIVORS;
PATIENT;
CARE;
D O I:
10.1016/j.soncn.2023.151408
中图分类号:
R73 [肿瘤学];
学科分类号:
100214 ;
摘要:
Objectives: Adolescents and young adults (AYAs) with cancer have identified connection to online communities of same-age peers to be essential for psycho-social support. In this study, the aim was to explore AYAs with cancers' and AYA cancer survivors' use of the Kr & UAELIG;ftv & UAELIG;rket cancer app's social forum and experiences of peer communities in the forum. Differences due to gender and treatment status were investigated.Data Sources: In all, 85 AYAs aged 15-29 were recruited: 46 on and 39 off cancer treatment. The use of the social forum was assessed by a questionnaire, which were analyzed using descriptive statistics, and telephone interviews were analyzed thematically by the Framework Method.Conclusion: Some AYAs assessed the social forum to be more valuable at time of diagnosis, while others experienced meaningful peer-support after cancer. Women were more active and diligent users than men. The following themes were found: 1) Common understanding of each other's challenges; 2) Other AYAs' stories increase the feeling of comfort but can also be difficult to accommodate; 3) A temporary and unwanted community; and 4) The interaction is personal but quickly stalls.Implications for Nursing Practice: The results are relevant to the development of AYA cancer apps, with a view to strengthening peer-to-peer relationships. Although the use of the Kr & UAELIG;ftv & UAELIG;rket app was temporary, it presented a meaningful community for AYAs with cancer. The community feeling reduced loneliness and increased the sense of togetherness. The app met AYAs' needs and wishes for peer-to-peer age-appropriate cancer support, which can be implemented and provided by nurses.& COPY; 2023 The Author(s). Published by Elsevier Inc. This is an open access article under the CC BY license (http://creativecommons.org/licenses/by/4.0/)
引用
收藏
页数:9
相关论文