Intellectual disability;
Extensive support needs;
Community living;
Independent living;
Community -based services;
QUALITY-OF-LIFE;
GROUP HOMES;
PERSONALIZED ARRANGEMENTS;
CHALLENGING BEHAVIOR;
CONGREGATED SETTINGS;
SOCIAL INCLUSION;
OUTCOMES;
DEINSTITUTIONALIZATION;
MOVE;
BARRIERS;
D O I:
10.1016/j.ridd.2023.104503
中图分类号:
G76 [特殊教育];
学科分类号:
040109 ;
摘要:
Background: Despite the benefits of community living for people with intellectual disabilities (ID) and extensive support needs, they remain highly institutionalized.Aims: To qualitatively analyze the perceptions of people with ID, including those with extensive support needs, professionals, and family members six months after the implementation of 11 community homes for 47 people in different regions of Spain Methods: Thematic analysis of 77 individual interviews conducted with 13 people with ID, 30 professionals and 34 family members was performed using Nvivo12. Results: Seven themes were found: (1) "the room as I like it", (2) "sometimes I don't obey", (3) "here I do a bit of everything", (4) "lots of people love me here", (5) "all thanks to them, who have helped me" (6) "I miss my mom", and (7) "I'm happy here". Implications: Transitioning into the community has shown a clear positive change in emotional well-being, opportunities to participate in activities or exercise control over one's life. Never-theless, certain restrictions were still present in people's lives, which significantly limit their right to independent living. While many of these restrictions may disappear, professional practices typical of a medical model can be recreated in services located in the community.
机构:
Kings Coll London, Inst Psychiat, David Goldberg Ctr, London SE5 8AF, EnglandKings Coll London, Inst Psychiat, David Goldberg Ctr, London SE5 8AF, England
机构:
Univ Free State, Fac Hlth Sci, Sch Nursing, ZA-9300 Bloemfontein, South AfricaUniv Free State, Fac Hlth Sci, Sch Nursing, ZA-9300 Bloemfontein, South Africa
Modula, Mantji Juliah
Sumbane, Gsakani Olivia
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机构:
Univ Limpopo, Fac Hlth Sci, Sch Med, ZA-0727 Polokwane, South AfricaUniv Free State, Fac Hlth Sci, Sch Nursing, ZA-9300 Bloemfontein, South Africa
机构:
Univ Kent, Tizard Ctr, Canterbury, Kent, England
La Trobe Univ, Living Disabil Res Ctr, Melbourne, Vic, AustraliaUniv Kent, Tizard Ctr, Canterbury, Kent, England
Beadle-Brown, Julie
Beecham, Jennifer
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机构:
Univ Kent, PSSRU, Canterbury, Kent, England
London Sch Econ & Polit Sci, London, EnglandUniv Kent, Tizard Ctr, Canterbury, Kent, England
机构:
Univ Birmingham, Sch Med, Div Neurosci, Social Sci Med Grp,Queen Elizabeth Psychiat Hosp, Birmingham B15 2QZ, W Midlands, EnglandUniv Birmingham, Sch Med, Div Neurosci, Social Sci Med Grp,Queen Elizabeth Psychiat Hosp, Birmingham B15 2QZ, W Midlands, England
Cumella, S
Ransford, N
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机构:
Univ Birmingham, Sch Med, Div Neurosci, Social Sci Med Grp,Queen Elizabeth Psychiat Hosp, Birmingham B15 2QZ, W Midlands, EnglandUniv Birmingham, Sch Med, Div Neurosci, Social Sci Med Grp,Queen Elizabeth Psychiat Hosp, Birmingham B15 2QZ, W Midlands, England
Ransford, N
Lyons, J
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机构:
Univ Birmingham, Sch Med, Div Neurosci, Social Sci Med Grp,Queen Elizabeth Psychiat Hosp, Birmingham B15 2QZ, W Midlands, EnglandUniv Birmingham, Sch Med, Div Neurosci, Social Sci Med Grp,Queen Elizabeth Psychiat Hosp, Birmingham B15 2QZ, W Midlands, England
Lyons, J
Burnham, H
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机构:
Univ Birmingham, Sch Med, Div Neurosci, Social Sci Med Grp,Queen Elizabeth Psychiat Hosp, Birmingham B15 2QZ, W Midlands, EnglandUniv Birmingham, Sch Med, Div Neurosci, Social Sci Med Grp,Queen Elizabeth Psychiat Hosp, Birmingham B15 2QZ, W Midlands, England