Intellectual disability;
Extensive support needs;
Community living;
Independent living;
Community -based services;
QUALITY-OF-LIFE;
GROUP HOMES;
PERSONALIZED ARRANGEMENTS;
CHALLENGING BEHAVIOR;
CONGREGATED SETTINGS;
SOCIAL INCLUSION;
OUTCOMES;
DEINSTITUTIONALIZATION;
MOVE;
BARRIERS;
D O I:
10.1016/j.ridd.2023.104503
中图分类号:
G76 [特殊教育];
学科分类号:
040109 ;
摘要:
Background: Despite the benefits of community living for people with intellectual disabilities (ID) and extensive support needs, they remain highly institutionalized.Aims: To qualitatively analyze the perceptions of people with ID, including those with extensive support needs, professionals, and family members six months after the implementation of 11 community homes for 47 people in different regions of Spain Methods: Thematic analysis of 77 individual interviews conducted with 13 people with ID, 30 professionals and 34 family members was performed using Nvivo12. Results: Seven themes were found: (1) "the room as I like it", (2) "sometimes I don't obey", (3) "here I do a bit of everything", (4) "lots of people love me here", (5) "all thanks to them, who have helped me" (6) "I miss my mom", and (7) "I'm happy here". Implications: Transitioning into the community has shown a clear positive change in emotional well-being, opportunities to participate in activities or exercise control over one's life. Never-theless, certain restrictions were still present in people's lives, which significantly limit their right to independent living. While many of these restrictions may disappear, professional practices typical of a medical model can be recreated in services located in the community.
机构:
Univ South Africa, Fac Humanities, Dept Hlth Studies, Pretoria, South Africa
Univ Free State, Fac Hlth Sci, Sch Nursing, Bloemfontein, South AfricaUniv South Africa, Fac Humanities, Dept Hlth Studies, Pretoria, South Africa
机构:
Illinois State Univ, Dept Special Educ, Normal, IL 61790 USAIllinois State Univ, Dept Special Educ, Normal, IL 61790 USA
Thompson, James R.
Bradley, Valerie J.
论文数: 0引用数: 0
h-index: 0
机构:
Human Serv Res Inst, Cambridge, MA 02140 USAIllinois State Univ, Dept Special Educ, Normal, IL 61790 USA
Bradley, Valerie J.
Buntinx, Wil H. E.
论文数: 0引用数: 0
h-index: 0
机构:
Univ Maastricht, St Anna Fdn, NL-6097 ZG Heel, NetherlandsIllinois State Univ, Dept Special Educ, Normal, IL 61790 USA
Buntinx, Wil H. E.
Schalock, Robert L.
论文数: 0引用数: 0
h-index: 0
机构:
Hastings Coll Law, Dept Psychol, Hastings, NE 68901 USA
Univ Salamanca, E-37008 Salamanca, SpainIllinois State Univ, Dept Special Educ, Normal, IL 61790 USA
Schalock, Robert L.
Shogren, Karrie A.
论文数: 0引用数: 0
h-index: 0
机构:
Univ Texas Austin, Austin, TX 78712 USAIllinois State Univ, Dept Special Educ, Normal, IL 61790 USA
Shogren, Karrie A.
Snell, Martha E.
论文数: 0引用数: 0
h-index: 0
机构:
Univ Virginia, Dept Curriculum Instruct & Special Educ, Charlottesville, VA 22904 USAIllinois State Univ, Dept Special Educ, Normal, IL 61790 USA
Snell, Martha E.
Wehmeyer, Michael L.
论文数: 0引用数: 0
h-index: 0
机构:
Univ Kansas, Ctr Dev Disabil, Lawrence, KS 66045 USA
Univ Kansas, Beach Ctr Disabil, Lawrence, KS 66045 USAIllinois State Univ, Dept Special Educ, Normal, IL 61790 USA