Whose uncertainty? Learning disability research in a time of COVID-19

被引:1
|
作者
Ryan, Sara [1 ,2 ]
Mikulak, Magdalena [1 ]
Hatton, Chris [1 ]
机构
[1] Manchester Metropolitan Univ, Dept Social Care & Social, Manchester, England
[2] Manchester Metropolitan Univ, Dept Social Care & Social Work, Brooks Bldg,Birley Campus,53 Bonsall St, Manchester M15 6GX, England
基金
美国国家卫生研究院;
关键词
Learning disability; COVID19; ethnography; support; growing older; RISK; PEOPLE; ADULTS;
D O I
10.1080/13645579.2023.2173425
中图分类号
C [社会科学总论];
学科分类号
03 ; 0303 ;
摘要
UK government responses to COVID-19 have intensified experiences of uncertainty for people with learning disabilities. The pandemic has eroded the support people receive, previously weakened by austerity measures. In research, COVID-19 related uncertainty has led to some reworking of methods and intensive contingency planning. This was to fulfil funding requirements and was underpinned by research teams' commitment to continuing research with people with learning disabilities not despite, but because of the pandemic. This is in a context where people with learning disabilities have been systemically excluded from research participation. Here, we reflect on these processes in relation to a project exploring how to improve the support for older people with learning disabilities. We consider the distribution of uncertainty in relation to conducting research during this time and ask whose uncertainty is attended to in these mid- and post-pandemic methodological debates and why. We suggest pandemic 'disruption' has created space for critical reflection allowing methodological creativity and consideration of in between strategies of trust, intuition, and emotion. We caution against the re-constraining of this space, instead arguing for continuing flexibility and creativity, where uncertainties are shared rather than used as a tool of control or dismissal of claims to support.
引用
收藏
页码:535 / 547
页数:13
相关论文
共 50 条
  • [21] Patient-centric research in the time of COVID-19: conducting ethical COVID-19 research in Africa
    Nembaware, Victoria
    Munung, Nchangwi Syntia
    Matimba, Alice
    Tiffin, Nicki
    BMJ GLOBAL HEALTH, 2020, 5 (08):
  • [22] Twitter, COVID-19, and disability
    Valencia, Stephanie
    Kirabo, Lynn
    XRDS: Crossroads, 2021, 28 (02): : 20 - 23
  • [23] Informal and Incidental Learning in the time of COVID-19
    Watkins, Karen E.
    Marsick, Victoria J.
    ADVANCES IN DEVELOPING HUMAN RESOURCES, 2021, 23 (01) : 88 - 96
  • [24] Digital Learning Ecologies in a Time of COVID-19
    Gonzalez-Sanmamed, Mercedes
    Cesar Munoz-Carril, Pablo
    Estevez-Blanco, Iris
    REVISTA PUBLICACIONES, 2021, 51 (03): : 13 - 16
  • [25] Research and higher education in the time of COVID-19
    不详
    LANCET, 2020, 396 (10251): : 583 - 583
  • [26] Unemployment in the time of COVID-19: A research agenda
    Blustein, David L.
    Duffy, Ryan D.
    Ferreira, Joaquim A.
    Cohen-Scali, Valerie
    Cinamon, Rachel Gali
    Allan, Blake A.
    JOURNAL OF VOCATIONAL BEHAVIOR, 2020, 119
  • [27] Education, Research, and Dishwashers in the Time of COVID-19
    Heitmann, John A.
    BIORESOURCES, 2021, 16 (01) : 13 - 15
  • [28] Applying the Lessons of Influenza to COVID-19 During a Time of Uncertainty
    Vardeny, Orly
    Madjid, Mohammad
    Solomon, Scott D.
    CIRCULATION, 2020, 141 (21) : 1667 - 1669
  • [29] Research in the Time of COVID-19: Challenges of Research Ethics Committees
    Reyes, Marita
    JOURNAL OF THE ASEAN FEDERATION OF ENDOCRINE SOCIETIES, 2020, 35 (01): : 29 - +
  • [30] Prospective Perinatal Research in the Time of COVID-19: A Research Symposium
    Kissler, Katherine
    Phillippi, Julia C.
    Erickson, Elise
    Tilden, Ellen
    Smith, Denise
    Breman, Rachel
    Carlson, Nicole
    JOURNAL OF MIDWIFERY & WOMENS HEALTH, 2021, 66 (05) : 685 - 685