Using a community engaged research approach to develop the social skills training program for adults with Williams syndrome

被引：0
|
作者：
Fisher, Marisa H. [1 ,2 ,5 ,6 ]
Black, Rhonda S. [3 ]
Kammes, Rebecca R. [1 ,4 ]
机构：
[1] Michigan State Univ, Dept Counseling Educ Psychol & Special Educ, E Lansing, MI USA
[2] Michigan State Univ, Ctr Serv Training & Res Independence & Desired Emp, E Lansing, MI USA
[3] Univ Hawaii Manoa, Dept Special Educ, Honolulu, HI USA
[4] UCLA, Semel Inst Neurosci & Human Behav, Los Angeles, CA USA
[5] Michigan State Univ, Dept Counseling Educ Psychol & Special Educ, 620 Farm Lane,Erickson Hall 338, E Lansing, MI 48824 USA
[6] Michigan State Univ, Ctr Serv Training & Res Independence & Desired Emp, 620 Farm Lane,Erickson Hall 338, E Lansing, MI 48824 USA
来源：
JOURNAL OF INTELLECTUAL DISABILITIES | 2024年
关键词：
Williams syndrome; community engaged research; social skills; community participation; AUTISM SPECTRUM DISORDER; PARTICIPATORY RESEARCH; CHILDREN; HYPERSOCIABILITY; VULNERABILITY; DISABILITIES; INDIVIDUALS; PHENOTYPE; DEFICITS;
D O I：
10.1177/17446295241245783
中图分类号：
G76 [特殊教育];
学科分类号：
040109 ;
摘要：
This article describes the development of a distance-delivered social skills training program for adults with Williams syndrome (SSTP-WS) through a community engaged approach. Throughout six phases of development, the research team received input from adults with Williams syndrome, caregivers, service providers, educators, and researchers on (a) the need for a training program and topics to be addressed (Phase 1), (b) an initial draft of the SSTP-WS (Phase 3), (c) the intervention pilot study (Phase 5), and (d) feedback to provide context for the results of the study (Phase 6). The development of the SSTP-WS resulted in an intervention aligned with the Williams syndrome community's values and needs that supports the unique cognitive and behavioral phenotypes and social characteristics of this low incidence disability population.
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页数：19
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