The regulation of health data sharing in Africa: a comparative study

被引:3
|
作者
McKay, Annelize G. Nienaber [1 ,2 ]
Brand, Dirk [3 ]
Botes, Marietjie [4 ]
Cengiz, Nezerith [4 ]
Swart, Marno [5 ]
机构
[1] Abertay Univ, Div Law, Sch Business Law & Social Sci, Dundee, Scotland
[2] Univ Pretoria, Dept Publ Law, Pretoria, South Africa
[3] Stellenbosch Univ, Sch Publ Leadership, Stellenbosch, South Africa
[4] Stellenbosch Univ, Div Med Eth & Law, Fac Med & Hlth Sci, Stellenbosch, South Africa
[5] Univ Cambridge, Fac Law, Cambridge, England
来源
JOURNAL OF LAW AND THE BIOSCIENCES | 2024年 / 11卷 / 01期
基金
美国国家卫生研究院;
关键词
health data; data sharing; Africa; policy; comparative study; data governance;
D O I
10.1093/jlb/lsad035
中图分类号
B82 [伦理学(道德学)];
学科分类号
摘要
The sharing of health data is an essential component in the provision of healthcare, in medical research, and disease surveillance. Health data sharing is subject to regulatory frameworks that vary across jurisdictions. In Africa, numerous factors complicate the regulation of health data sharing, including technological, motivational, economic, and political barriers, as well as ethical and legal challenges. This comparative study examines the regulation of health data sharing in Africa by comparing and contrasting the legal and policy frameworks of five African countries. The study identifies gaps and inconsistencies in the current regulatory regimes and provides recommendations for improving the regulation of health data sharing in Africa.
引用
收藏
页数:22
相关论文
共 50 条
  • [31] REALISING THE RIGHT TO HEALTH: A COMPARATIVE STUDY OF SOUTH AFRICA, THE UNITED STATES AND CHINA
    Pan, Xiao
    HONG KONG LAW JOURNAL, 2015, 45 : 517 - 546
  • [32] Oral Health Challenges in Refugees from the Middle East and Africa: A Comparative Study
    Hoyvik, Ann C.
    Lie, Birgit
    Grjibovski, Andrej M.
    Willumsen, Tiril
    JOURNAL OF IMMIGRANT AND MINORITY HEALTH, 2019, 21 (03) : 443 - 450
  • [33] Public perspectives on increased data sharing in health research in the context of the 2023 National Institutes of Health Data Sharing Policy
    de Rivera, Stephanie Nino
    Creber, Ruth Masterson
    Zhao, Yihong
    Eslami, Sarah
    Mangal, Sabrina
    Dugdale, Lydia S.
    Turchioe, Meghan Reading
    PLOS ONE, 2024, 19 (08):
  • [34] Knowledge Sharing for Maternal Health at a Public Hospital in South Africa
    Nkunkwane, Nkateko Nikiwe
    Fombad, M. C.
    JOURNAL OF INFORMATION & KNOWLEDGE MANAGEMENT, 2022, 21 (01)
  • [35] Patrolling portals: the regulation of online genetic data sharing
    Lang, Michael
    Crouse, Alanna
    Zawati, Ma'n H.
    EUROPEAN JOURNAL OF HUMAN GENETICS, 2023, 31 : 329 - 329
  • [36] Private commercial companies sharing health-relevant consumer data with health researchers in sub-Saharan Africa: an ethical exploration
    Stuart, Rennie
    Sergio, Litewka
    Effy, Vayena
    George, Chingarande
    Tiwonge, Mtande
    Nezerith, Cengiz
    Jerome, Singh
    Walter, Jaoko
    Keymanthri, Moodley
    POLICY STUDIES, 2024,
  • [37] Sharing research data to improve public health
    Walport, Mark
    Brest, Paul
    LANCET, 2011, 377 (9765): : 537 - 539
  • [38] Sharing health data: developing country perspectives
    Tangcharoensathien, Viroj
    Boonperm, Jirawan
    Jongudomsuk, Pongpisut
    BULLETIN OF THE WORLD HEALTH ORGANIZATION, 2010, 88 (06) : 468 - 469
  • [39] Journal of Health Psychology policy on data sharing
    Marks, David F.
    JOURNAL OF HEALTH PSYCHOLOGY, 2017, 22 (10) : 1219 - 1220
  • [40] Secure Sharing of Health Data Over Cloud
    Alamri, Fahad Saeed
    Lee, Ki Dong
    2015 5TH NATIONAL SYMPOSIUM ON INFORMATION TECHNOLOGY: TOWARDS NEW SMART WORLD (NSITNSW), 2015,