Fetal Neurology Practice Survey: Current Practice and the Future Directions

被引:14
|
作者
Tarui, Tomo [1 ]
Venkatesan, Charu [2 ]
Gano, Dawn [3 ]
Lemmon, Monica E. [4 ]
Mulkey, Sarah B. [5 ,6 ,7 ]
Pardo, Andrea C. [8 ]
Emrick, Lisa [9 ]
Scher, Mark [10 ]
Agarwal, Sonika [11 ,12 ,13 ]
机构
[1] Brown Univ, Hasbro Childrens Hosp, Warren Alpert Med Sch, Div Pediat Neurol, Providence, RI USA
[2] Univ Cincinnati, Cincinnati Childrens Hosp Med Ctr, Dept Pediat, Div Neurol,Coll Med, Cincinnati, OH USA
[3] Univ Calif San Francisco, Dept Neurol & Pediat, San Francisco, CA USA
[4] Duke Univ, Sch Med, Dept Pediat & Populat Hlth Sci, Durham, NC USA
[5] Childrens Natl Hosp, Prenatal Pediat Inst, Washington, DC USA
[6] George Washington Univ, Sch Med & Hlth Sci, Dept Neurol, Washington, DC USA
[7] George Washington Univ, Sch Med & Hlth Sci, Dept Pediat, Washington, DC USA
[8] Northwestern Univ, Ann & Robert H Lurie Childrens Hosp Chicago, Dept Pediat, Div Neurol,Feinberg Sch Med, Chicago, IL USA
[9] Baylor Coll Med, Texas Childrens Hosp, Dept Pediat Neurol & Dev Neurosci, Houston, TX USA
[10] Case Western Reserve Univ, Sch Med, Pediat & Neurol, Cleveland, OH USA
[11] Childrens Hosp Philadelphia, Div Neurol & Pediat, Philadelphia, PA USA
[12] Univ Penn, Div Neurol, Perelman Sch Med, Philadelphia, PA USA
[13] Childrens Hosp Philadelphia, Div Neurol & Pediat, 3401 Civ Ctr Blvd, Philadelphia, PA 19104 USA
关键词
Fetal; Neurology; Practice; Counseling; Prognostic; Fetal MRI; Outcomes; Brain;
D O I
10.1016/j.pediatrneurol.2023.04.016
中图分类号
R74 [神经病学与精神病学];
学科分类号
摘要
Background: Fetal neurology is a rapidly evolving field. Consultations aim to diagnose, prognosticate, and coordinate prenatal and perinatal management along with other specialists and counsel expectant parents. Practice parameters and guidelines are limited.Methods: A 48-question online survey was administered to child neurologists. Questions targeted current care practices and perceived priorities for the field.Results: Representatives from 43 institutions in the United States responded; 83% had prenatal diagnosis centers, and the majority performed on-site neuroimaging. The earliest gestational age for fetal magnetic resonance imaging was variable. Annual consultations ranged from <20 to >100 patients. Fewer than half (n = 17.40%) were subspecialty trained. Most respondents (n = 39.91%) were interested in participating in a collaborative registry and educational initiatives.Conclusions: The survey highlights heterogeneity in clinical practice. Large multisite and multidisciplinary collaborations are essential to gather data that inform outcomes for fetuses evaluated across institutions through registries as well as creation of guidelines and educational material.& COPY; 2023 Elsevier Inc. All rights reserved.
引用
收藏
页码:74 / 79
页数:6
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