Aging with Pride: Innovations in Dementia Empowerment and Action (IDEA)

被引:2
|
作者
Fredriksen-Goldsen, Karen I. [1 ]
Jones, Brittany R. [1 ]
Hoy-Ellis, Charles [1 ]
Kim, Hyun-Jun [1 ]
Emlet, Charles A. [1 ]
La Fazia, David [1 ]
Mckenzie, Glenise [2 ]
Petros, Ryan [1 ]
Teri, Linda [3 ]
机构
[1] Univ Washington, Sch Social Work, 1410 15th Ave NE, Seattle, WA 98105 USA
[2] Oregon Hlth & Sci Univ, Sch Nursing, 3181 SW Sam Jackson Pk Rd, Portland, OR 97239 USA
[3] Univ Washington, Sch Nursing, 1410 NE Campus Pkwy, Seattle, WA 98195 USA
基金
美国国家卫生研究院;
关键词
Intervention; Cultural adaptation; LGBT; Virtual; Dementia; RCT; MILD COGNITIVE IMPAIRMENT; OLDER-ADULTS; HEALTH; PROGRAMS; TECHNOLOGY; CAREGIVERS; DISEASE; BURDEN; CARE;
D O I
10.1016/j.conctc.2023.101169
中图分类号
R-3 [医学研究方法]; R3 [基础医学];
学科分类号
1001 ;
摘要
Background: Sexual and gender minority (SGM) older adults and their care partners, compared to the general population, face unique vulnerabilities that exacerbate living with dementia, including elevated disparities in comorbidities, social isolation, and structural inequities, such as discrimination and lack of access to supports.Methods: This paper describes the virtual adaptation process of the first-ever randomized controlled clinical trial intervention, Aging with Pride: Innovations in Dementia Empowerment and Action (IDEA), that was designed for SGM older adults living with dementia and their care partners and built upon the foundation of RDAD and NHAS.Results: The virtual adaptation of IDEA was guided by the goals of accessibility, quality, ease of delivery, sus-tainability, and cultural relevance. The implementation required the development of a HIPPA-compliant online virtual platform, coach and participant virtual training, and modification of necessary intervention elements and materials, as needed. Based on the preliminary findings, the participants and intervention coaches responded well to the virtual adaptation of IDEA. When comparing to in-person delivery, the virtual delivery decreased attrition among both intervention participants and coaches.Discussion: The virtual adaptation of the IDEA intervention resulted in preliminary, unexpected, yet potentially important benefits, including the ability to expand the reach of the intervention and decreased attrition. Virtual interventions are an emerging field for people living with dementia and their care partners and additional systematic research is needed to fully assess the benefits and limitations as well as to evaluate if specific sub-groups are better served by differing delivery modalities.
引用
收藏
页数:6
相关论文
共 50 条
  • [31] The phenomenology of empowerment in collective action
    Drury, J
    Cocking, C
    Beale, J
    Hanson, C
    Rapley, F
    BRITISH JOURNAL OF SOCIAL PSYCHOLOGY, 2005, 44 : 309 - 328
  • [32] Parents take action for empowerment
    Faureholm, J
    JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 2000, 44 : 279 - 279
  • [33] Editorial: Innovations in dementia and ageing care
    Quinn, Catherine
    Wolverson, Emma
    Mountain, Gail
    FRONTIERS IN REHABILITATION SCIENCES, 2023, 4
  • [34] Global Innovations and Strategies for Dementia Prevention
    Conn, David
    INTERNATIONAL PSYCHOGERIATRICS, 2019, 31 : 37 - 37
  • [35] Revisioning aging: Empowerment of older women
    Manoogian-O'Dell, M
    JOURNAL OF WOMEN & AGING, 2001, 13 (03) : 103 - 105
  • [36] Revisioning Aging; Empowerment of Older Women
    Wilson, Jill
    AUSTRALASIAN JOURNAL ON AGEING, 2001, 20 (02) : 103 - 104
  • [37] Successful Aging: A Communication Guide to Empowerment
    Nussbaum, Jon F.
    JOURNAL OF LANGUAGE AND SOCIAL PSYCHOLOGY, 2013, 32 (04) : 495 - 497
  • [38] Knowledge, empowerment, and action: testing the empowerment theory in a tourism context
    Joo, Dongoh
    Woosnam, K. le Maurice
    Strzelecka, Marianna
    Boley, B. Bynum
    JOURNAL OF SUSTAINABLE TOURISM, 2020, 28 (01) : 69 - 85
  • [39] Revisioning aging: Empowerment of older women
    Feldman, S
    JOURNAL OF SOCIOLOGY, 2000, 36 (03): : 389 - 390
  • [40] Feasibility and acceptability evaluation of the Promoting Independence in Dementia (PRIDE) intervention for living well with dementia
    Csipke, Emese
    Moniz-Cook, Esme
    Leung, Phuong
    Yates, Lauren
    Birt, Linda
    Walton, Holly
    Hogervorst, Eef
    Mountain, Gail
    Charlesworth, Georgina
    Orrell, Martin
    INTERNATIONAL PSYCHOGERIATRICS, 2021, 33 (06) : 601 - 614