Mindful living;
dignified dying;
terminally ill patients;
Asian palliative care;
end of life;
INTERVENTIONS;
CANCER;
DIGNITY;
WOMEN;
CARE;
D O I:
10.1017/S147895152300202X
中图分类号:
R19 [保健组织与事业(卫生事业管理)];
学科分类号:
摘要:
ObjectivesIn Chochinov's dignity model, living in the here and now (mindful living) is explicitly stated as a dignity-conserving practice. However, what facilitates mindful living remain unclear. This study aims to investigate the mechanisms of mindful living among Asian terminally ill patients.MethodsThis interpretative phenomenological analysis comprised patients aged 50 and above with a prognosis of less than 12 months. Fifty interview transcripts from a larger Family Dignity Intervention study conducted in Singapore were used for the analysis.ResultsFindings revealed 12 themes that were organized into 3 axioms of mindful living for dignified dying: (a) purposive self-awareness, (b) family-centered attention, and (c) attitudes of mortality acceptance. Through purposive self-awareness, patients introspected their lived experience with illness and anticipated death to find resilience and contentment. Patients' conscious family-centered attention revolved around their relationships, achievements, and legacy within the family, leading to a deepened sense of interconnectedness with self and beloved others at life's end. Lastly, patients adopted nonjudgmental attitudes of mortality acceptance as they made necessary arrangements in preparation for their death, allowing them to treasure every living moment and obtain a closure in life. An empirical model of mindful living for dignified dying was developed based on these emerging themes, illustrating the interweaving of intention, attention, and attitude for facilitating meaningful living in the face of mortality.Significance of resultsMindful living is a dignity-preserving practice, which helps terminally ill patients to find tranquility in each present moment despite their impending death. The identified mechanisms of mindful living lay important groundwork for a new understanding and possible directions for culture-specific, mindfulness-based, family-centered interventions suited to terminally ill patients in the Asian context.
机构:
Govind Ballabh Pant Inst Postgrad Med Educ & Res, Dept Anesthesiol & Intens Care, New Delhi, IndiaGovind Ballabh Pant Inst Postgrad Med Educ & Res, Dept Anesthesiol & Intens Care, New Delhi, India
Choudhuri, Anirban H.
Sharma, Ankit
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Govind Ballabh Pant Inst Postgrad Med Educ & Res, Dept Anesthesiol & Intens Care, New Delhi, IndiaGovind Ballabh Pant Inst Postgrad Med Educ & Res, Dept Anesthesiol & Intens Care, New Delhi, India
Sharma, Ankit
Uppal, Rajeev
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Govind Ballabh Pant Inst Postgrad Med Educ & Res, Dept Anesthesiol & Intens Care, New Delhi, IndiaGovind Ballabh Pant Inst Postgrad Med Educ & Res, Dept Anesthesiol & Intens Care, New Delhi, India
机构:Vrije Univ Brussels, Dept Med Sociol & Hlth Sci, End Of Life Care Res Grp, B-1090 Brussels, Belgium
Michiels, Eva
Deschepper, Reginald
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Vrije Univ Brussels, Dept Med Sociol & Hlth Sci, End Of Life Care Res Grp, B-1090 Brussels, BelgiumVrije Univ Brussels, Dept Med Sociol & Hlth Sci, End Of Life Care Res Grp, B-1090 Brussels, Belgium
Deschepper, Reginald
Van Der Kelen, Greta
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机构:Vrije Univ Brussels, Dept Med Sociol & Hlth Sci, End Of Life Care Res Grp, B-1090 Brussels, Belgium
Van Der Kelen, Greta
Bernheim, Jan L.
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机构:Vrije Univ Brussels, Dept Med Sociol & Hlth Sci, End Of Life Care Res Grp, B-1090 Brussels, Belgium
Bernheim, Jan L.
Mortier, Freddy
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机构:Vrije Univ Brussels, Dept Med Sociol & Hlth Sci, End Of Life Care Res Grp, B-1090 Brussels, Belgium
Mortier, Freddy
Stichele, Robert Vander
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机构:Vrije Univ Brussels, Dept Med Sociol & Hlth Sci, End Of Life Care Res Grp, B-1090 Brussels, Belgium
Stichele, Robert Vander
Deliens, Luc
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机构:Vrije Univ Brussels, Dept Med Sociol & Hlth Sci, End Of Life Care Res Grp, B-1090 Brussels, Belgium