The self-management and transition manual "ALL YOU NEED IS LOVE" for adolescents with chronic kidney disease

被引:2
|
作者
Huang, Yunzhen [1 ,4 ,5 ]
Rak, Eniko [1 ]
Faldowski, Richard A. [2 ]
Nazareth, Meaghan [3 ,6 ]
Ryan, Jessica [1 ]
Javalkar, Karina [3 ,7 ]
Pitts, Brian [3 ,8 ,9 ]
De Ferris, Maria Diaz-Gonzalez de [3 ]
机构
[1] Univ N Carolina, Sch Med, Dept Allied Hlth Sci, Bondurant Hall,CB 7120, Chapel Hill, NC 27599 USA
[2] Univ N Carolina, Gillings Sch Global Publ Hlth, Dept Biostat, 170 Rosenau Hall,CB 7400, Chapel Hill, NC 27599 USA
[3] Univ N Carolina, Sch Med, Dept Pediat, 260 MacNider Hall,CB 7220, Chapel Hill, NC 27599 USA
[4] 151 State Univ Dr, Los Angeles, CA 90032 USA
[5] Calif State Univ Los Angeles, Div Special Educ & Counseling, Los Angeles, CA 90032 USA
[6] Campbell Univ, Sch Osteopath Med, Buies Creek, NC USA
[7] Boston Childrens Hosp, Dept Pediat, Boston, MA USA
[8] Univ Colorado, Sch Med, Dept Psychiat, Aurora, CO USA
[9] Rocky Mt Pediat PC, Aurora, CO USA
关键词
Chronic kidney disease; Adolescents; Patient education; Health care transition preparation; Self-management; ADULT CARE; CHILD; MINDFULNESS; INTERVENTION; READINESS; EDUCATION;
D O I
10.1016/j.pedn.2022.10.006
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
Purpose: To examine the effects of "ALL YOU NEED IS LOVE", a novel six-week, self-directed patient education manual designed to improve chronic kidney disease knowledge/self-management, health care transition readiness, self-advocacy, and mindfulness skills among adolescents with chronic kidney disease. Design and methods: We enrolled 49 adolescents aged 11-17 years (mean age 14.7 +/- 1.9; 53.1% males) from a university hospital kidney center who had CKD stages 3 and greater, who were randomly assigned into the "ALL YOU NEED IS LOVE" patient education only group (n = 31) or the "ALL YOU NEED IS LOVE" patient education plus mindfulness training group (n = 18). Participants completed Qualtrics surveys at baseline, postintervention, and three-month follow-up. The survey included measures of outcome variables (i.e., selfmanagement/transition readiness, patient self-advocacy, and mindfulness), and an additional demographic questionnaire was included in the baseline survey. Multilevel model analyses were used to examine the effects of group and time on the outcome variables. Results: Multilevel model analyses showed an overall significant time effect across all outcome variables in both groups. However, the group effects were not statistically significant across the outcome variables. Conclusions: Both interventions significantly increased participants' self-management/HCT readiness, selfadvocacy, and mindfulness over time. Mindfulness training may not bring additional benefits to the "ALL YOU NEED IS LOVE" education manual. Practice implications: Pediatric nurses and clinicians may utilize the self-directed "ALL YOU NEED IS LOVE" manual to increase self-management/transition readiness, self-advocacy, and mindfulness among adolescents with chronic kidney disease. (c) 2023 The Authors. Published by Elsevier Inc. This is an open access article under the CC BY-NC-ND license (http:// creativecommons.org/licenses/by-nc-nd/4.0/).
引用
收藏
页码:104 / 110
页数:7
相关论文
共 50 条
  • [41] Expanding Diabetes Self-Management Education to Include Chronic Kidney Disease Education
    Prithivathi, Preetha
    Spigler, Michael
    Paris, Melanie
    Alawode, Molly
    Bello, Morenike
    Fatima, Urooj
    DIABETES, 2020, 69
  • [42] Identifying Mobile Applications Aimed at Self-Management in People With Chronic Kidney Disease
    Lewis, Rachel A.
    Lunney, Meaghan
    Chong, Christy
    Tonelli, Marcello
    CANADIAN JOURNAL OF KIDNEY HEALTH AND DISEASE, 2019, 6
  • [43] PATIENT PERSPECTIVES OF ENGAGING IN SELF-MANAGEMENT BEHAVIORS RECOMMENDED IN CHRONIC KIDNEY DISEASE
    Schrauben, Sarah
    Rivera, Eleanor
    Amaral, Sandra
    Dember, Laura
    Feldman, Harold
    Barg, Frances
    MEDICAL DECISION MAKING, 2021, 41 (04) : E308 - E309
  • [44] An evaluation of a self-management package for people with diabetes at risk of chronic kidney disease
    Thomas, Nicola
    Bryar, Rosamund
    PRIMARY HEALTH CARE RESEARCH AND DEVELOPMENT, 2013, 14 (03): : 270 - 280
  • [45] A Mobile App to Support Self-management of Chronic Kidney Disease: Development Study
    Markossian, Talar W.
    Boyda, Jason
    Taylor, Jennifer
    Etingen, Bella
    Modave, Francois
    Price, Ron
    Kramer, Holly J.
    JMIR HUMAN FACTORS, 2021, 8 (04):
  • [46] RENAL HEALTH PROJECT: INNOVATIVE TECHNOLOGIES FOR Self-Management OF CHRONIC KIDNEY DISEASE
    da Silva Junior, Geraldo Bezerra
    Askari, Marjan
    Ramalho de Oliveira, Juliana Gomes
    Rodrigues de Araujo, Erica Maria
    Marino de Mattos Albuquerque, Ana Carolina Rattacaso
    de Freitas Filho, Ronaldo Almeida
    de Vasconcelos Filho, Jose Eurico
    Sanders-Pinheiro, Helady
    NEPHROLOGY, 2021, 26 : 51 - 52
  • [47] Pilot of the Chronic Disease Self-Management Program for Adolescents and Young Adults With Sickle Cell Disease
    Crosby, Lori E.
    Joffe, Naomi E.
    Peugh, James
    Ware, Russell E.
    Britto, Maria T.
    JOURNAL OF ADOLESCENT HEALTH, 2017, 60 (01) : 120 - 123
  • [48] Evaluation of Kidney Disease Education on Clinical Outcomes and Knowledge of Self-Management Behaviors of Patients with Chronic Kidney Disease
    Enworom, Chinyere D.
    Tabi, Marian
    NEPHROLOGY NURSING JOURNAL, 2015, 42 (04) : 363 - 372
  • [49] Self-Management Education and Support in Chronic Disease Management
    McGowan, Patrick T.
    PRIMARY CARE, 2012, 39 (02): : 307 - +
  • [50] Self-management skills in adolescents with chronic rheumatic disease: A cross-sectional survey
    Erica F Lawson
    Aimee O Hersh
    Mark A Applebaum
    Edward H Yelin
    Megumi J Okumura
    Emily von Scheven
    Pediatric Rheumatology, 9