Childhood hearing loss: An uncertain context for parenting

被引：1

作者：

Greenhalgh, Kate ^{[1
]}

Mahler, Nicole ^{[2
,3
]}

Zimmer-Gembeck, Melanie J. ^{[1
,4
]}

Shanley, Dianne C. ^{[1
,4
]}

机构：

[1] Griffith Univ, Sch Appl Psychol, Gold Coast Campus,Hlth Bldg G40,Level 7, Gold Coast, Qld 4222, Australia

[2] Griffith Univ, Hopkins Ctr Res Rehabil & Resilience, Gold Coast, Australia

[3] Interkantonale Hsch Heilpadag, Inst Sprache & Kommunikat Unter Erschwerten Bedin, Zurich, Switzerland

[4] Griffith Univ, Menzies Hlth Inst Queensland, Gold Coast, Australia

来源：

DEAFNESS & EDUCATION INTERNATIONAL | 2023年 / 25卷 / 02期

关键词：

Children; hearing loss; parent; stress; uncertainty; family-centred; education; decision-making; HARD-OF-HEARING; ILLNESS UNCERTAINTY; 3-YEAR-OLD CHILDREN; CAREGIVER; DEAF; INTERVENTION; IMPAIRMENT; COMMUNICATION; ADOLESCENTS; DISTRESS;

D O I：

10.1080/14643154.2022.2125626

中图分类号：

G40 [教育学];

学科分类号：

040101 ; 120403 ;

摘要：

Parents of children with hearing loss (HL) often navigate an unfamiliar and uncertain path. This qualitative study investigated the nature of parental uncertainty: (1) immediately after a child's HL was identified; (2) prior to primary school entry; and (3) during primary school. Open-ended questions in online surveys were completed by participants (N = 61) with: (a) personal experience as a parent of a child with HL (n = 35); (b) professional experience with children who have HL (n = 19); or (c) a combination of both parental and professional experience (n = 7). Six major themes were abstracted using thematic analysis, including uncertainty about: (1) the Pervasive Impact of HL, (2) the Nature and Causes of HL, (3) Developmental Impacts, (4) Family Life, (5) Family Decision-Making, and (6) Education and Support Services. The salience of these depended on the stage in time following identification.

引用

页码：121 / 139

页数：19

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