Live networks in care production with the user at the center of the treatment for multidrug-resistant tuberculosis

被引:0
|
作者
Leung, Janaina Aparecida de Medeiros [1 ]
Cunha, Fatima Teresinha Scarparo [2 ]
Merhy, Emerson Elias [3 ]
Kritski, Afranio Lineu [4 ]
机构
[1] Univ Fed Rio de Janeiro UFRJ, Fac Med FM, Posgrad Programa Posgrad Clin Med, Rua Prof Rodolpho Paulo Rocco 255,1 Andar,Sala 01D, BR-21941913 Rio De Janeiro, RJ, Brazil
[2] Univ Fed Rio de Janeiro, Escola Enfermagem Alfredo Pinto, Dept Enfermagem Saude Publ, Rio de Janeiro, RJ, Brazil
[3] UFRJ, Inst Ciencias Med, Ctr Multidisciplinar, Dept Saude Colet Mental & Familia, Macae, RJ, Brazil
[4] Univ Fed Rio de Janeiro, FM, Programa Acad TB, Rio de Janeiro, RJ, Brazil
来源
关键词
Tuberculosis; Multidrug-resistant tuberculosis; Patient-centered care; Life-changing events; Community-based networks; PEOPLE;
D O I
10.1590/interface.230439
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
We followed the trajectory of a guiding user undergoing treatment for multidrug-resistant tuberculosis (MDR-TB). The narratives of Live Networks in care production showed: 1) Caring in the act of living: Overcoming stigmas and cultivating bonds that help overcome discourses fostered by fear, prejudice, exclusion and invisibility of subjects; 2) Live Networks of care: The in-betweens of the norm; and 3) Interfaces of user-health worker care: How can we demystify the judgment of health workers who, subordinated to limiting protocols, often stigmatize the user as someone who "abandons the treatment"? The guiding user perceived that caring means deterritorializing oneself, expressing one's desires as power for transformation, and leaving the modus operandi towards creativity, with the user at the center of the process.
引用
收藏
页数:15
相关论文
共 50 条
  • [21] Treatment of multidrug-resistant tuberculosis in Thailand
    Maranetra, KN
    CHEMOTHERAPY, 1996, 42 : 10 - 15
  • [22] Multidrug-resistant tuberculosis care in the United States
    Gobaud, A. N.
    Haley, C. A.
    Wilson, J. W.
    Bhavaraju, R.
    Lardizabal, A.
    Seaworth, B. J.
    Goswami, N. D.
    INTERNATIONAL JOURNAL OF TUBERCULOSIS AND LUNG DISEASE, 2020, 24 (04) : 409 - 413
  • [23] Multidrug-resistant tuberculosis
    Dheda, Keertan
    Mirzayev, Fuad
    Cirillo, Daniela Maria
    Udwadia, Zarir
    Dooley, Kelly E.
    Chang, Kwok-Chiu
    Omar, Shaheed Vally
    Reuter, Anja
    Perumal, Tahlia
    Horsburgh, C. Robert
    Murray, Megan
    Lange, Christoph
    NATURE REVIEWS DISEASE PRIMERS, 2024, 10 (01)
  • [24] MULTIDRUG-RESISTANT TUBERCULOSIS
    GALAI, N
    GRAHAM, N
    CHAISSON, R
    NELSON, KE
    VLAHOV, D
    LEWIS, J
    NEW ENGLAND JOURNAL OF MEDICINE, 1992, 327 (16): : 1172 - 1173
  • [25] Multidrug-resistant tuberculosis
    Zager, Ellen M.
    McNerney, Ruth
    BMC INFECTIOUS DISEASES, 2008, 8 (1)
  • [26] Multidrug-resistant tuberculosis
    Albino, JA
    Reichman, LB
    CURRENT OPINION IN INFECTIOUS DISEASES, 1997, 10 (02) : 116 - 122
  • [27] Multidrug-resistant tuberculosis
    Moreira Lemos, Antonio Carlos
    Matos, Eliana Dias
    BRAZILIAN JOURNAL OF INFECTIOUS DISEASES, 2013, 17 (02): : 239 - 246
  • [28] Multidrug-resistant tuberculosis
    DiPerri, G
    Vento, S
    Concia, E
    Cazzadori, A
    NEW ENGLAND JOURNAL OF MEDICINE, 1996, 334 (04): : 268 - 268
  • [29] Multidrug-resistant tuberculosis
    Shuter, J
    Bellin, E
    INFECTIOUS DISEASES IN CLINICAL PRACTICE, 1997, 6 (07) : 430 - 437