Improvement of palliative care for people with intellectual disabilities: A multi-site evaluation

被引：0
|
作者：
De Veer, Anke J. E. [1 ]
Voss, Hille [1 ]
Francke, Anneke L. [1 ,2 ,3 ]
de Man, Y. [1 ]
机构：
[1] Netherlands Inst Hlth Serv Res, NIVEL, POB 1568, NL-3500 BN Utrecht, Netherlands
[2] Vrije Univ Amsterdam, Amsterdam UMC Locat, Amsterdam, Netherlands
[3] Amsterdam UMC, Expertise Ctr Palliat Care, Amsterdam, Netherlands
来源：
JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES | 2024年 / 37卷 / 03期
关键词：
disability professionals; end of life; intellectual disability; intervention; multi-site evaluation; palliative care; participatory action research; tools; QUALITY IMPROVEMENT; IMPLEMENTATION; LIFE; PHYSICIANS; DEATH; STAFF; END;
D O I：
10.1111/jar.13223
中图分类号：
G44 [教育心理学];
学科分类号：
0402 ; 040202 ;
摘要：
BackgroundTo improve the quality of palliative care, six evidence-based tools were implemented in 10 care services specialised in care for people with intellectual disabilities. Contextual differences were taken into account by using a participatory action research approach.MethodThe RE-AIM framework (Reach, Effectiveness, Adoption, Implementation and Maintenance) structured the evaluation. Data sources were online questionnaires completed by 299 professionals at baseline (response 45.2%) and 250 professionals after 2.5 years (35.1%), 11 semi-structured group interviews with 43 professionals, field notes and implementation plans.ResultsA total of 767 professionals and 43 teams were reached. The effectiveness of the intervention was demonstrated in an improved knowledge of palliative care policy and increased competences among professionals. 79% of the professionals adopted tools in the toolbox. The participatory action research method was perceived as valuable in driving change.ConclusionsImproving palliative care needs a context-specific, flexible approach, with involvement of all stakeholders.
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页数：13
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