Hospital, hospice, or home: A scoping review of the importance of place in pediatric palliative care

被引:4
|
作者
Walker, Meaghan [1 ]
Nicolardi, Danielle [1 ]
Christopoulos, Tea [1 ]
Ross, Timothy [1 ,2 ,3 ]
机构
[1] Holland Bloorview Kids Rehabil Hosp, Bloorview Res Inst, Toronto, ON, Canada
[2] Univ Toronto, Dept Geog & Planning, Toronto, ON, Canada
[3] Univ Toronto, Rehabil Sci Inst, Toronto, ON, Canada
关键词
Palliative care; Place; Children; Pediatric; Health care; OF-LIFE CARE; YOUNG-PEOPLE; CHILDREN; CANCER; DEATH; END; EXTUBATION; ENGLAND; CHOICE; NEED;
D O I
10.1017/S1478951523000664
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
BackgroundPalliative care necessitates questions about the preferred place for delivering care and location of death. Place is integral to palliative care, as it can impact proximity to family, available resources/support, and patient comfort. Despite the importance of place, there is remarkably little literature exploring its role in pediatric palliative care (PPC). ObjectivesTo understand the importance and meaning of place in PPC. MethodsWe conducted a scoping review to understand the importance of place in PPC. Five databases were searched using keywords related to "pediatric," "palliative," and "place." Two reviewers screened results, extracted data, and analyzed emergent themes pertaining to place. ResultsFrom 3076 search results, we identified and reviewed 25 articles. The literature highlights hospital, home, and hospice as 3 distinct PPC places. Children and their families have place preferences for PPC and place of death, and a growing number prefer death to occur at home. Results also indicate numerous factors influence place preferences (e.g., comfort, grief, cultural/spiritual practices, and socioeconomic status). Significance of resultsPlace influences families' PPC decisions and experiences and thus warrants further study. Greater understanding of the importance and roles of place in PPC could enhance PPC policy and practice, as well as PPC environments.
引用
收藏
页码:925 / 934
页数:10
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