Self-management Support for Patients with Atopic Dermatitis: A Qualitative Interview Study

被引:1
|
作者
Krontoft, Anna Sophie Belling [1 ,2 ,5 ]
Skov, Lone [1 ,2 ]
Ammitzboell, Elisabeth [3 ]
Lomborg, Kirsten [2 ,4 ]
机构
[1] Copenhagen Univ Hosp, Herlev Gentofte Hosp, Dept Dermatol & Allergy, Hellerup, Denmark
[2] Univ Copenhagen, Fac Hlth & Med Sci, Dept Clin Med, Copenhagen, Denmark
[3] Hareskoven Hudklin, Private Clin Dermatol, Vaerloese, Denmark
[4] Copenhagen Univ Hosp, Steno Diabet Ctr Copenhagen, Dept Clin Res, Herlev, Denmark
[5] Copenhagen Univ Hosp Herlev & Gentofte, Dept Dermatol & Allergy, Gentofte Hosp Vej 15, DK-2900 Hellerup, Denmark
来源
关键词
self-management support; patient-centred care; recognition; agenda-setting; patient engagement; clinician-patient relationship; patient satisfaction; patient education; REPORTED OUTCOME MEASURES; CONSENSUS;
D O I
10.1177/23743735241231696
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Patients with a chronic skin disease, eg, atopic dermatitis, need self-management skills to increase their quality of life. We explored patients' needs for self-management support from healthcare professionals and how these needs can be met in a dermatology setting. Interpretive description methodology was chosen for iterative data collection and analysis of qualitative interviews with patients with atopic dermatitis. Two mutually dependent themes were found to be supportive of patients' self-management. Personal and disease-related recognition was fundamental to successful support. However, guidance for agenda-setting from healthcare professionals was also needed on the wide range of topics that could be covered in the consultation based on individual needs. Patients need self-management support in addition to what can be found with family, friends, or peers. It is crucial that the support is delivered with an appreciative approach by healthcare professionals with profound knowledge of atopic dermatitis. Equally important is guidance towards agenda-setting, a way to co-construct the consultation with a clear focus on the specific patient's needs.
引用
收藏
页数:8
相关论文
共 50 条
  • [11] Self-management challenges and support needs among patients with primary glaucoma: a qualitative study
    Hua, Yiting
    Lu, Hujie
    Dai, Jingyao
    Zhou, Yewei
    Zhou, Wenzhe
    Wang, Aisun
    Chen, Yanyan
    Liang, Youping
    BMC NURSING, 2023, 22 (01)
  • [12] Heart failure patients' experiences of a self-management peer support program: A qualitative study
    Lockhart, Elizabeth
    Foreman, Jane
    Mase, Rebecca
    Heisler, Michele
    HEART & LUNG, 2014, 43 (04): : 292 - 298
  • [13] Barriers to self-management of patients with adenomyosis: A qualitative study
    Huang, Rong
    Li, Xiaohan
    Jiang, Hui
    Li, Quanlei
    NURSING OPEN, 2022, 9 (02): : 1086 - 1095
  • [14] Expectations and needs of patients with esophageal cancer during curative treatment regarding self-management, self-management support and eHealth: a qualitative study
    Adriaans, Danielle J. M.
    Rosendaal, Marielle
    Nieuwenhuijzen, Grard A. P.
    Heesakkers, Fanny B. M.
    Notenboom, Loes
    Teijink, Joep A. W.
    Laarhoven, Hanneke W. M. van
    Daele, Angelique T. M. Dierick-van
    EUROPEAN JOURNAL OF ONCOLOGY NURSING, 2024, 71
  • [15] Usage and Users of Online Self-Management Programs for Adult Patients With Atopic Dermatitis and Food Allergy: An Explorative Study
    van Os-Medendorp, Harmieke
    van Leent-de Wit, Ilse
    de Bruin-Weller, Marjolein
    Knulst, Andre
    JMIR RESEARCH PROTOCOLS, 2015, 4 (02):
  • [16] Nurses' perceptions of success in self-management support: An exploratory qualitative study
    Duprez, Veerle
    Beeckman, Dimitri
    Van Hecke, Ann
    Verhaeghe, Sofie
    RESEARCH IN NURSING & HEALTH, 2020, 43 (03) : 274 - 283
  • [17] Self-management support: A qualitative study of ethical dilemmas experienced by nurses
    Dwarswaard, Jolanda
    de Bovenkamp, Hester van
    PATIENT EDUCATION AND COUNSELING, 2015, 98 (09) : 1131 - 1136
  • [18] Moving between ideologies in self-management support-A qualitative study
    Bossy, Dagmara
    Knutsen, Ingrid Ruud
    Rogers, Anne
    Foss, Christina
    HEALTH EXPECTATIONS, 2019, 22 (01) : 83 - 92
  • [19] Experiences of self-management support in patients with diabetes and multimorbidity: a qualitative study in Norwegian general practice
    Sorensen, Monica
    Groven, Karen Synne
    Gjelsvik, Bjorn
    Almendingen, Kari
    Garnweidner-Holme, Lisa
    PRIMARY HEALTH CARE RESEARCH AND DEVELOPMENT, 2020, 21
  • [20] Self-Management Support Needs of Patients with Chronic Diseases in a South African Township: A Qualitative Study
    Dube, Loveness
    Rendall-Mkosi, Kirstie
    Van den Broucke, Stephan
    Bergh, Anne-Marie
    Mafutha, Nokuthula G.
    JOURNAL OF COMMUNITY HEALTH NURSING, 2017, 34 (01) : 21 - 31