Co-production in practice: A qualitative study of the development of advance care planning workshops for South Asian elders

被引:0
|
作者
Clabburn, Oliver [1 ]
Stone, Tracey [1 ,2 ]
Anwar, Naheed [3 ]
Saleem, Taskin [3 ]
Khan, Salim [3 ]
Hewat, Verena [4 ]
Grieve, Usha [4 ]
Dawson, Lesel [5 ]
Farr, Michelle [2 ,6 ]
Redwood, Sabi [2 ,6 ]
Selman, Lucy E. [1 ]
机构
[1] Univ Bristol, Bristol Med Sch, Palliat & End Life Care Res Grp, Wanynge Hall,39 Whatley Rd, Bristol BS8 2PS, England
[2] Univ Hosp Bristol & Weston NHS Fdn Trust, Natl Inst Hlth & Care Res Appl Res Collaborat West, Bristol, England
[3] Subco Trust, London, England
[4] Compass Dying, London, England
[5] Univ Bristol, Sch Humanities, Dept English, Bristol, England
[6] Univ Bristol, Bristol Med Sch, Populat Hlth Sci, Bristol, England
关键词
South Asian people; advance care planning; end-of-life care; ethnic and racial minorities; minority groups; cultural characteristics; focus groups; qualitative research; OF-LIFE CARE; COMMUNITY;
D O I
10.1177/02692163241302678
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Background: Advance care planning can improve patient and family outcomes; however, minoritised ethnic communities experience access barriers. Co-production offers a way to design culturally appropriate information and support, but evidence is needed to understand its implementation in palliative care.Aim: To explore and describe how two charities used co-production to develop and deliver community-based advance care planning workshops for South Asian elders.Design: Workshops were co-produced by two charities. In parallel, a multi-component qualitative study was conducted comprising workshop observations, semi-structured interviews with charity staff and focus groups with workshop participants, facilitated by community co-researchers in English, Hindi, Urdu and Punjabi. Data were analysed using thematic analysis.Setting/participants: Four workshops were held in a London (UK) community setting (each with 5-30 participants); four interviews were conducted with charity staff members, and three focus groups with 16 workshop participants.Results: We describe three main themes: Co-production in action: organic origins and trusted foundations; Co-production processes embedded in equal partnership; and Impact of the workshops. Fundamental to co-production processes was the community-led approach of the local charity, the trust of the local South Asian community and the relationship between the charities, including transparent communication and mutual respect. The workshops were reported to be useful and enjoyable, engendering a sense of agency and connection and helped disseminate awareness and knowledge through the community, benefitting the wider system.Conclusions: Co-production can help widen access to advance care planning. Findings offer an in-depth example of co-production-in-action to inform intervention development and research.
引用
收藏
页码:126 / 138
页数:13
相关论文
共 50 条
  • [31] Barriers and facilitators to nurse-led advance care planning and palliative care practice change in primary healthcare: a qualitative study
    Nagarajan, Srivalli, V
    Lewis, Virginia
    Halcomb, Elizabeth
    Rhee, Joel
    Morton, Rachael L.
    Mitchell, Geoffrey K.
    Tieman, Jennifer
    Phillips, Jane L.
    Detering, Karen
    Gavin, Jennifer
    Clayton, Josephine M.
    AUSTRALIAN JOURNAL OF PRIMARY HEALTH, 2022, 28 (02) : 151 - 157
  • [32] COVID-19 and Co-Production in Health and Social Care Research, Policy, and Practice: Vol 1: The Challenges and Necessity of Co-Production
    Roesch-Marsh, Autumn
    BRITISH JOURNAL OF SOCIAL WORK, 2022, 52 (06): : 3774 - 3776
  • [33] Building public engagement and access to palliative care and advance care planning: a qualitative study
    Black, Rachel
    Hasson, Felicity
    Slater, Paul
    Beck, Esther
    Mcilfatrick, Sonja
    BMC PALLIATIVE CARE, 2024, 23 (01)
  • [34] Advance care planning in older dialysis patients: health care literacy qualitative study
    Riordan, Julien
    Kane, P. M.
    Noble, Helen
    Smyth, Andrew
    BMJ SUPPORTIVE & PALLIATIVE CARE, 2021,
  • [35] Advance Care Planning for Intensive Care Patients During the Perioperative Period: A Qualitative Study
    Yamamoto, Kanako
    Yonekura, Yuki
    Hayama, Junko
    Matsubara, Taketo
    Misumi, Hiroyasu
    Nakayama, Kazuhiro
    SAGE OPEN NURSING, 2021, 7
  • [36] Nurses' perspectives on their potential role in advance care planning in home care: A qualitative study
    Huckle, Tilman
    Silies, Katharina
    Kirchner, Anne
    Berg, Almuth
    Meyer, Gabriele
    Schnakenberg, Rieke
    Hoffmann, Falk
    Koeberlein-Neu, Juliane
    Koepke, Sascha
    PFLEGE, 2022, 35 (06): : 327 - 335
  • [37] A qualitative study of health care professionals’ views and experiences of paediatric advance care planning
    Barbara A. Jack
    Tracy K. Mitchell
    Mary R. O’Brien
    Sergio A. Silverio
    Katherine Knighting
    BMC Palliative Care, 17
  • [38] A qualitative study of health care professionals' views and experiences of paediatric advance care planning
    Jack, Barbara A.
    Mitchell, Tracy K.
    O'Brien, Mary R.
    Silverio, Sergio A.
    Knighting, Katherine
    BMC PALLIATIVE CARE, 2018, 17
  • [39] An Exploratory Study of Peer Support and Advance Care Planning in African American Elders with Serious Illness
    Saith, S. A.
    Brock, D.
    Daaleman, T.
    JOURNAL OF THE AMERICAN GERIATRICS SOCIETY, 2014, 62 : S279 - S279
  • [40] Definition and recommendations of advance care planning: A Delphi study in five Asian sectors
    Mori, Masanori
    Chan, Helen Y. L.
    Lin, Cheng-Pei
    Kim, Sun-Hyun
    Lip, Raymond Ng Han
    Martina, Diah
    Yuen, Kwok Keung
    Cheng, Shao-Yi
    Takenouchi, Sayaka
    Suh, Sang-Yeon
    Menon, Sumytra
    Kim, Jungyoung
    Chen, Ping-Jen
    Iwata, Futoshi
    Tashiro, Shimon
    Kwok, Oi Ling Annie
    Peng, Jen-Kuei
    Huang, Hsien-Liang
    Morita, Tatsuya
    Korfage, Ida J.
    Rietjens, Judith A. C.
    Kizawa, Yoshiyuki
    PALLIATIVE MEDICINE, 2025, 39 (01) : 99 - 112