Burden and care time for dementia caregivers in the LIVE@Home.Path trial

被引:0
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作者
Berge, Line Iden [1 ,2 ]
Angeles, Renira Corinne [1 ,3 ]
Gedde, Marie Hidle [1 ,4 ]
Faeo, Stein Erik [5 ]
Mannseth, Janne [6 ]
Vislapuu, Maarja [1 ,5 ]
Puaschitz, Natalie Genevieve Soyland [1 ,5 ,7 ]
Hillestad, Eirin [1 ,8 ]
Aarsland, Dag [9 ]
Achterberg, Wilco Peter [10 ]
Allore, Heather [11 ,12 ]
Ballard, Clive [13 ]
Li, Fan [12 ,14 ]
Selbaek, Geir [15 ,16 ,17 ]
Vahia, Ipsit Vihang [18 ,19 ]
Husebo, Bettina Sandgate [1 ,20 ]
机构
[1] Univ Bergen, Fac Med, Ctr Elderly & Nursing Home Med, Dept Global Publ Hlth & Primary Care, Bergen, Norway
[2] NKS Olaviken Gerontopsychiat Hosp, Erdal, Norway
[3] NORCE Norwegian Res Ctr, Bergen, Norway
[4] Haraldsplass Deaconess Hosp, Bergen, Norway
[5] VID Specialized Univ, Fac Hlth Studies, Dept Nursing, Bergen, Norway
[6] Univ Bergen, Fac Med, Dept Global Publ Hlth & Primary Care, Sect Epidemiol & Med Stat, Bergen, Norway
[7] Western Norway Univ Appl Sci, Bergen, Norway
[8] Dign Ctr, Bergen, Norway
[9] Kings Coll London, Inst Psychiat Psychol & Neurosci, London, England
[10] Leiden Univ, Med Ctr, Ctr Med Older People, Dept Publ Hlth & Primary Care, Leiden, Netherlands
[11] Yale Univ, Sch Med, Dept Internal Med, New Haven, CT USA
[12] Yale Sch Publ Hlth, Dept Biostat, New Haven, CT USA
[13] Univ Exeter, Med Sch, Exeter, Devon, England
[14] Yale Sch Publ Hlth, Ctr Methods Implementat & Prevent Sci, New Haven, CT USA
[15] Vestfold Hosp Trust, Norwegian Natl Advisory Unit Ageing & Hlth, Tonsberg, Norway
[16] Univ Oslo, Inst Clin Med, Fac Med, Oslo, Norway
[17] Univ Oslo, Dept Psychol, N-0316 Oslo, Norway
[18] McLean Hosp, Belmont, MA USA
[19] Harvard Med Sch, Boston, MA USA
[20] Univ Bergen, Neurosysmed Ctr, Dept Global Publ Hlth & Primary Care, Bergen, Norway
关键词
care coordination; caregiver burden; dementia; resource use; stepped wedge randomized controlled trial; SCALE;
D O I
10.1002/alz.14622
中图分类号
R74 [神经病学与精神病学];
学科分类号
摘要
INTRODUCTION: We investigated the effectiveness of the multicomponent learning, innovation, volunteer support, empowerment (LIVE) intervention on caregiver burden and care time in dyads of home-dwelling people with dementia and caregivers. METHOD: A 24 month, multicenter, stepped-wedge trial, randomized dyads to receive the 6-month LIVE intervention by municipal coordinators (May 2019 to December 2021). Primary outcomes were caregiver burden assessed by Relative Stress Scale (RSS) and informal care time spent on personal activities assessed by Resource Utilization in Dementia Personal Activities of Daily Living (RUD-PADL). Analyses used an intention-to-treat. RESULTS: Two hundred eighty dyads were enrolled. Caregivers during the intervention period reported lower levels of RSS of 0.7 points (standard deviation [SD]: 0.8) compared to the caregivers in the control period. Caregivers during the intervention period reported more time spent on PADL of 11.7 hours/month (SD: 8.7) compared to caregivers during the control period; both were not statistically significant (P > 0.05). DISCUSSION: The LIVE intervention did not reduce caregiver burden or care time.
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页数:12
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