Therapeutic trajectories of families with rare diseases in Chile from the perspectives of patients, carers, and healthcare workers: a qualitative study

被引：0
|
作者：
Báltica Cabieses [1 ]
Alexandra Obach [2 ]
Antonia Roberts [1 ]
Gabriela Repetto [1 ]
机构：
[1] Universidad del Desarrollo,Centro de Salud Global Intercultural, Instituto de Ciencias e Innovación en Medicina, Facultad de Medicina Clínica Alemana, Facultad de Psicología
[2] University of York,Department of Health Sciences
[3] Universidad del Desarrollo,Programa de Enfermedades Raras, Centro de Genómica y Genética, Instituto de Ciencias e Innovación en Medicina, Facultad de Medicina Clínica Alemana
来源：
Orphanet Journal of Rare Diseases | / 20卷 / 1期
关键词：
Rare diseases; Therapeutic trajectories; Qualitative analysis; Chile; Perceptions and experiences; Healthcare systems;
D O I：
10.1186/s13023-025-03595-6
中图分类号：
学科分类号：
摘要：
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