Sharing meaning across the neurodivide: Research through illustration alongside people with profound intellectual and multiple disabilities (PIMD)

被引:1
|
作者
Roehr, Johanna [1 ]
机构
[1] Univ Dundee, DJCAD, Studio Ordinary, Level 5 Matthew Bldg,13 Perth Rd, Dundee DD1 4HT, Scotland
基金
英国惠康基金;
关键词
methodology; sensory ethnography; AAC; multimodal; communication; disability rights; epistemic injustice; accessible research;
D O I
10.1386/jill_00072_1
中图分类号
J [艺术];
学科分类号
13 ; 1301 ;
摘要
The perspectives of people labelled with profound intellectual and multiple disabilities (PIMD) remain significantly underrepresented in academic research. This article introduces a developing research methodology that explores how illustration -based methods might assist researchers in attuning to, and amplifying, non-linguistic contributions to knowledge made by people who do not use conventional language to communicate. As a medium that champions alternative forms of communication and aims to make complex subjects accessible to a wide range of audiences, illustration offers additional opportunities to open up the research arena to people with PIMD. This potential is discussed here within the framework of the author's ongoing Ph.D. research. The methodology outlined in this article is developed within the Sensory Studio, a mobile workspace purpose-built for artistic exchange and co -creation between artists with PIMD and Frozen Light Theatre, a Norwich -based organization creating multi -sensory shows specifically for PIMD audiences. Reflecting on the ethical considerations that shaped the design of this methodology, the author shares some of the unanticipated findings that research through illustration has so far brought to light.
引用
收藏
页码:235 / 256
页数:22
相关论文
共 50 条
  • [41] EXPLORING A PLAYFUL INTERACTIVE PRODUCT FOR PEOPLE WITH PROFOUND INTELLECTUAL AND MULTIPLE DISABILITIES
    Embregts, P.
    vanOorsouw, W.
    Wintels, S.
    vanDelden, R.
    Evers, V.
    Reidsma, D.
    JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 2019, 63 (07) : 823 - 824
  • [42] The role of communication in primary healthcare for people with profound intellectual and multiple disabilities
    Goldbart, J.
    Chadwick, D.
    Jolliffe, J.
    Traynor, A.
    Barker, J.
    Holt, J.
    JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 2016, 60 (7-8) : 673 - 673
  • [43] The Role of Sound in Residential Facilities for People With Profound Intellectual and Multiple Disabilities
    van den Bosch, Kirsten A.
    Andringa, Tjeerd C.
    Baskent, Deniz
    Vlaskamp, Carla
    JOURNAL OF POLICY AND PRACTICE IN INTELLECTUAL DISABILITIES, 2016, 13 (01) : 61 - 68
  • [44] The contribution of carers and voluntary sector to developing good nursing practice to meet the health care needs of people with profound intellectual and multiple disabilities (PIMD)
    Roberts, J
    JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 2004, 48 : 356 - 356
  • [45] Effectiveness and sustainability of interventions designed to enhance the quality of interactions between staff and people with profound intellectual and multiple disabilities (PIMD): a systematic review of the literature
    Ware, J.
    Goldbart, J.
    Anderson, E.
    Tan, A.
    JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES, 2014, 27 (04) : 291 - 291
  • [46] An inventory of assessment practices in support of people with profound intellectual and multiple disabilities
    Wessels, M.
    van der Putten, A.
    JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES, 2018, 31 (04) : 578 - 578
  • [47] Health and sex education for people with profound and multiple intellectual disabilities (PMID)
    Mallett, A
    JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 2004, 48 : 344 - 344
  • [48] Odour detection in children and young people with profound intellectual and multiple disabilities
    Petitpierre, Genevieve
    Dind, Juliane
    De Blasio, Catherine
    Gremaud, Germaine
    JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES, 2022, 35 (02) : 519 - 530
  • [49] DIAGNOSTIC AID FOR DEMENTIA IN PEOPLE WITH SEVERE/PROFOUND INTELLECTUAL (AND MULTIPLE) DISABILITIES
    Wissing, M. B. G.
    Koudenburg, S. D.
    van der Wal, I. A.
    Groen, M. R.
    van Dam, L.
    Hobbelen, H. S. M.
    De Deyn, P. P.
    Waninge, A.
    Dekker, A.
    JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 2024, 68 (07) : 668 - 668
  • [50] SMART CONTINENCE CARE: IS IT EFFECTIVE FOR PEOPLE WITH PROFOUND INTELLECTUAL AND MULTIPLE DISABILITIES?
    Van Cooten, V.
    Gielissen, M.
    van Maastricht, G.
    den Hollander, W.
    Smeets, O.
    Boon, B.
    JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 2024, 68 (07) : 857 - 857