Translation, cultural adaptation, and psychometric testing of the Supportive care needs survey for partners and caregivers for Swedish family members of persons diagnosed with colorectal cancer

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作者
Maria Samuelsson
Anne Wennick
Mariette Bengtsson
Marie-Louise Lydrup
Jenny Jakobsson
机构
[1] Malmö University,Faculty of Health and Society, Department of Care Science
[2] Skåne University Hospital,Department of Pediatrics
[3] Skåne University Hospital,Department of Surgery and Gastroenterology
关键词
Colorectal cancer; Caregivers; Cognitive interviews; Family members; Psychometrics; Supportive care needs; Translation; Unmet needs; Validity; Questionnaire;
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摘要
Colorectal cancer is the third most common cancer diagnose globally. At times of cancer, also the health and wellbeing of the surrounding family members is negatively affected. As a result, family members of persons diagnosed with cancer report that they too need support. Still, no validated questionnaire that enable measurement of family members needs of support throughout the colorectal cancer trajectory existed in Swedish. Thus, the present study undertook the process of translation of a questionnaire from English to Swedish. Thereto, evaluated it among Swedish family members of persons diagnosed with colorectal cancer. The evaluation showed a successful translation and the translated questionnaire appeared reliable and useful for measuring the family members´ needs of support throughout the colorectal cancer trajectory. However, it requires further evaluation.
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