Internet-Based Caregiver Support for Chinese Canadians Taking Care of a Family Member with Alzheimer Disease and Related Dementia

被引：105

作者：

Chiu, Teresa ^{[1
]}

Marziali, Elsa ^{[2
,3
]}

Colantonio, Angela ^{[4
,5
]}

Carswell, Anne ^{[6
]}

Gruneir, Marilyn

Tang, Mary

Eysenbach, Gunther ^{[7
,8
]}

机构：

[1] Hong Kong Polytech Univ, Dept Rehabil Sci, Kowloon, Hong Kong, Peoples R China

[2] Univ Toronto, Fac Med, Toronto, ON M5S 1A1, Canada

[3] Univ Toronto, Fac Social Work, Toronto, ON M5S 1A1, Canada

[4] Univ Toronto, Dept Occupat Sci & Occupat Therapy, Toronto, ON M5S 1A1, Canada

[5] Toronto Rehabil Inst, Toronto, ON, Canada

[6] Dalhousie Univ, Sch Occupat Therapy, Halifax, NS B3H 3J5, Canada

[7] Univ Toronto, Dept Hlth Policy Management & Evaluat, Toronto, ON M5S 1A1, Canada

[8] Univ Hlth Network, Ctr Global eHlth Innovat, Toronto, ON, Canada

来源：

CANADIAN JOURNAL ON AGING-REVUE CANADIENNE DU VIEILLISSEMENT | 2009年 / 28卷 / 04期

关键词：

family caregivers; clinical informatics; multilingualism; occupational therapy; social work; treatment outcome; CULTURAL-DIFFERENCES; ONLINE SUPPORT; INTERVENTION; HEALTH; TELEPHONE; SYMPTOMS; SHANGHAI; THERAPY; NETWORK; BURDEN;

D O I：

10.1017/S0714980809990158

中图分类号：

R4 [临床医学]; R592 [老年病学];

学科分类号：

1002 ; 100203 ; 100602 ;

摘要：

The aim of this study was to assess the usability of a new Internet-based Caregiver Support Service (ICSS) and evaluate its effects on health outcomes of Chinese Canadians who cared for a family member with dementia. Demographic and questionnaire data were collected from 28 participants, and in-depth interviews were conducted with 10 participants. Results showed that non-users reported higher levels of burden post-intervetion, and frequent users showed post-intervention reduction in experienced burden. Traditional beliefs shaped caregivers' needs; also, ethno-cultural-linguistic contexts affected system usability and were associated with usage behaviour. This study indicates that caregivers can benefit from receiving professional support via asynchronous e-mails and a dedicated information web site. The ICSS is a feasible approach for supporting caregivers who prefer an alternative service model. This emerging service requires more research in: enhanced technology design, service delivery models for immigrant caregivers, and evaluation of effectiveness and cost-effectiveness.

引用

页码：323 / 336

页数：14

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