A moment just for me - parents' experiences of an intervention for person-centred information in paediatric oncology

被引:4
|
作者
Ringner, Anders [1 ,2 ]
Olsson, Cecilia [3 ]
Eriksson, Emma [1 ,2 ]
From, Ida [1 ,2 ]
Bjork, Maria [4 ]
机构
[1] Umea Univ, Dept Nursing, SE-90185 Umea, Sweden
[2] Umea Univ Hosp, Clin Dept Paediat, Umea, Sweden
[3] Karlstad Univ, Dept Hlth Sci, Karlstad, Sweden
[4] Jonkoping Univ, Sch Hlth & Welf, Dept Nursing, CHILD Res Grp, Jonkoping, Sweden
关键词
Intervention; Nursing; Paediatric oncology; Parental experience; Person-centred information; Qualitative content analysis; Semi-structured interview; QUALITATIVE CONTENT-ANALYSIS; REPRESENTATIONAL APPROACH; CHILDHOOD-CANCER; PATIENT; EDUCATION; MODEL;
D O I
10.1016/j.ejon.2021.101923
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
Purpose: Information can help parents of children with cancer by reducing uncertainty and giving them a sense of control in a chaotic situation. Although providing information to parents is a core activity of paediatric oncology nursing, few studies focus on interventions for informing parents. Thus, the aim of this study is to evaluate parents? experiences after participating in a person-centred information intervention for parents of children with cancer. Method: This study is part of a process evaluation of a person-centred informational intervention in paediatric oncology for patients? parents. Qualitative semi-structured interviews with 13 parents who had taken part in the intervention were analysed using qualitative content analysis. Results: An opening for healing emerged as the overarching theme, consisting of three categories. Gaining a deeper understanding of the entire situation describes how parents benefitted from processing current topics and moving forward by learning. Caring reflections in a safe space describes how parents appreciated having a moment just for themselves and feeling better by venting their feelings. Meeting a competent and compassionate nurse describes how parents experienced trust and being listened to. Conclusion: Having individual information meetings integrated as a primary nursing responsibility, mediated by competent and compassionate nurses also responsible for the care of the child, could enhance person-centred care and individualise parental education.
引用
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页数:6
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