Supporting Adolescents and Young Adults With Cancer Through Transitions: Position Statement From the Canadian Task Force on Adolescents and Young Adults With Cancer

被引:31
|
作者
Wilkins, Krista L. [1 ]
D'Agostino, Norma [2 ,3 ]
Penney, Annette M. [9 ]
Barr, Ronald D. [6 ,7 ,8 ]
Nathan, Paul C. [4 ,5 ]
机构
[1] Univ New Brunswick, Fac Nursing, Fredericton, NB E3B 5A3, Canada
[2] Princess Margaret Canc Ctr, Dept Psychosocial Oncol, Toronto, ON, Canada
[3] Princess Margaret Canc Ctr, Dept Palliat Care, Toronto, ON, Canada
[4] Hosp Sick Children, Dept Pediat, Toronto, ON M5G 1X8, Canada
[5] Univ Toronto, Toronto, ON, Canada
[6] McMaster Univ, Dept Pediat, Hamilton, ON, Canada
[7] McMaster Univ, Dept Pathol, Hamilton, ON, Canada
[8] McMaster Univ, Dept Med, Hamilton, ON, Canada
[9] IWK Hlth Ctr, Dept Hematol Oncol, Halifax, NS, Canada
关键词
adolescent; young adult; transition; cancer; oncology; CHILDHOOD-CANCER; HEALTH-CARE; SURVIVORS; UNCERTAINTY; FERTILITY; ISSUES; IMPACT;
D O I
10.1097/MPH.0000000000000103
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
Objective: This position statement from the Canadian Task Force on Adolescents and Young Adults with cancer aims to (1) conceptualize the numerous transition experiences encountered by adolescents and young adults (AYA) with cancer; and (2) provide recommendations on how to help the AYA regain a sense of control over their lives as they adjust to these transition experiences. Methods: We reviewed and synthesized a heterogeneous sample of studies and recommendations, ranging from well-designed case-controlled investigations to opinions of respected authorities based on clinical experience, and reports of expert committees. Results: We describe the key factors that have an impact on different transitions during the cancer journey, and the need for developmentally appropriate services for AYA with cancer that consider both the system issues and individual transition issues. Our recommendations are not intended to be prescriptive, but they are broad enough to be applicable in different types of settings (eg, family doctor, cancer center, specialty service) and systems beyond health care (eg, school system, social system). Conclusions: The Task Force urges health care providers, parents, and AYA with cancer to work together in planning and implementing strategies that will enable individuals to navigate the transitions they encounter along the cancer journey successfully, and strive for meaningful participation in life situations, achieving their potential as fully functional members of society.
引用
收藏
页码:545 / 551
页数:7
相关论文
共 50 条
  • [1] THE CANADIAN TASK FORCE ON ADOLESCENTS AND YOUNG ADULTS (AYA) WITH CANCER; A PROCESS FOR CHANGE
    Rogers, Paul
    Barr, Ronald D.
    Schacter, Brent
    PEDIATRIC BLOOD & CANCER, 2011, 57 (05) : 839 - 839
  • [2] Quality Cancer Care for Adolescents and Young Adults: A Position Statement
    Zebrack, Brad
    Mathews-Bradshaw, Beth
    Siegel, Stuart
    JOURNAL OF CLINICAL ONCOLOGY, 2010, 28 (32) : 4862 - 4867
  • [3] The experience of partners supporting adolescents and young adults with cancer
    Davies, Jane
    Hannigan, Ben
    Kelly, Daniel
    JOURNAL OF ADVANCED NURSING, 2019, 75 (11) : 2890 - 2898
  • [4] Supporting the Needs of Adolescents and Young Adults: Integrated Palliative Care and Psychiatry Clinic for Adolescents and Young Adults with Cancer
    Abdelaal, Mohamed
    Mosher, Pamela J.
    Gupta, Abha
    Hannon, Breffni
    Cameron, Christine
    Berman, Malka
    Moineddin, Rahim
    Avery, Jonathan
    Mitchell, Laura
    Li, Madeline
    Zimmermann, Camilla
    Al-Awamer, Ahmed
    CANCERS, 2021, 13 (04) : 1 - 14
  • [5] Adolescents and Young Adults With Cancer
    Turgeman, Ilit
    West, Howard
    JAMA ONCOLOGY, 2023, 9 (03) : 440 - 440
  • [6] Health Care Transitions Among Adolescents and Young Adults With Cancer
    Ehrhardt, Matthew J.
    Friedman, Danielle Novetsky
    Hudson, Melissa M.
    JOURNAL OF CLINICAL ONCOLOGY, 2024, 42 (06) : 743 - 754
  • [7] Adolescents and Young Adults With Cancer: Their Cancer Normal
    Pyke-Grimm, K. A.
    PEDIATRIC BLOOD & CANCER, 2020, 67 : S86 - S86
  • [8] Uncertainty in Adolescents and Young Adults With Cancer
    Decker, Carol L.
    Haase, Joan E.
    Bell, Cynthia J.
    ONCOLOGY NURSING FORUM, 2007, 34 (03) : 681 - 688
  • [9] Depression in adolescents and young adults with cancer
    Park, Eliza M.
    Rosenstein, Donald L.
    DIALOGUES IN CLINICAL NEUROSCIENCE, 2015, 17 (02) : 171 - 180
  • [10] Disparities in Adolescents and Young Adults With Cancer
    Isenalumhe, Leidy L.
    Fridgen, Olivia
    Beaupin, Lynda K.
    Quinn, Gwendolyn P.
    Reed, Damon R.
    CANCER CONTROL, 2016, 23 (04) : 424 - 433