Sexual and gender minorities;
LGBTQ;
Palliative care;
End-of-life;
Hospice;
Cancer survivor;
HEALTH INEQUALITIES;
GAY;
TRANSGENDER;
PEOPLE;
ISSUES;
RISK;
DISCRIMINATION;
POPULATIONS;
EXPERIENCES;
DISCLOSURE;
D O I:
10.1007/s11912-021-01034-w
中图分类号:
R73 [肿瘤学];
学科分类号:
100214 ;
摘要:
Purpose of ReviewSexual and gender minority (SGM) cancer survivors (post-diagnosis to end-of-life) can face inadequate services along the cancer care continuum, including palliative and end-of-life (EOL) care. A growing literature base calls for more research on factors influencing palliative and EOL care access, outcomes, and distinct needs of SGM cancer survivors and caregivers. We analyzed peer-reviewed articles published 2015-present to identify trends.Recent FindingsTen articles were SGM-focused or inclusive, cancer-focused, and included substantive discussion of palliative and/or EOL care. Four were research studies (three case studies and one qualitative interview study) and six were literature reviews. Recurrent topics included disparities in cancer risk, access, and care; essential cultural and clinical competencies; and need for professional and organizational standards and policies addressing interpersonal and institutional discrimination and inclusion.SummaryProvision of equitable, competent palliative and EOL care depends on continued advancements in research, translated into person-centered approaches to care. We discuss implications of findings for improving palliative and EOL care for SGM cancer survivors.
机构:
Univ Tokyo, Grad Sch Med, Dept Palliat Care Nursing, Tokyo, Japan
Alexandria Univ, Fac Nursing, Dept Crit Care & Emergency Nursing, Alexandria, EgyptUniv Tokyo, Grad Sch Med, Dept Palliat Care Nursing, Tokyo, Japan
Eltaybani, Sameh
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Igarashi, Ayumi
Yamamoto-Mitani, Noriko
论文数: 0引用数: 0
h-index: 0
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Univ Tokyo, Dept Gerontol Home Care & Long Term Care Nursing, Tokyo, JapanUniv Tokyo, Grad Sch Med, Dept Palliat Care Nursing, Tokyo, Japan
机构:
Kings Coll London, Cecily Saunders Inst, Dept Palliat Care Policy & Rehabil, London SE5 9PJ, EnglandKings Coll London, Cecily Saunders Inst, Dept Palliat Care Policy & Rehabil, London SE5 9PJ, England
Harding, Richard
Epiphaniou, Eleni
论文数: 0引用数: 0
h-index: 0
机构:
Kings Coll London, Cecily Saunders Inst, Dept Palliat Care Policy & Rehabil, London SE5 9PJ, EnglandKings Coll London, Cecily Saunders Inst, Dept Palliat Care Policy & Rehabil, London SE5 9PJ, England
Epiphaniou, Eleni
Chidgey-Clark, Jayne
论文数: 0引用数: 0
h-index: 0
机构:
Guys & St Thomas NHS Fdn Trust, London, EnglandKings Coll London, Cecily Saunders Inst, Dept Palliat Care Policy & Rehabil, London SE5 9PJ, England
机构:
Mem Sloan Kettering Canc Ctr, Support Care Med, 1275 York Ave, New York, NY 10021 USAMem Sloan Kettering Canc Ctr, Support Care Med, 1275 York Ave, New York, NY 10021 USA
Haviland, Kelly
Walters, Chasity Burrows
论文数: 0引用数: 0
h-index: 0
机构:
Mem Sloan Kettering Canc Ctr, Patient & Caregiver Engagement, 1275 York Ave, New York, NY 10021 USAMem Sloan Kettering Canc Ctr, Support Care Med, 1275 York Ave, New York, NY 10021 USA
Walters, Chasity Burrows
Newman, Susan
论文数: 0引用数: 0
h-index: 0
机构:
Med Univ South Carolina, Coll Nursing, Charleston, SC 29425 USAMem Sloan Kettering Canc Ctr, Support Care Med, 1275 York Ave, New York, NY 10021 USA
机构:
Kings Coll London, Cicely Saunders Inst, Dept Palliat Care Policy & Rehabil, London SE5 9PJ, England
Univ Amsterdam, Ctr Social Sci & Global Hlth, Amsterdam, NetherlandsKings Coll London, Cicely Saunders Inst, Dept Palliat Care Policy & Rehabil, London SE5 9PJ, England
Gysels, Marjolein
Evans, Catherine J.
论文数: 0引用数: 0
h-index: 0
机构:
Kings Coll London, Cicely Saunders Inst, Dept Palliat Care Policy & Rehabil, London SE5 9PJ, EnglandKings Coll London, Cicely Saunders Inst, Dept Palliat Care Policy & Rehabil, London SE5 9PJ, England
Evans, Catherine J.
Lewis, Penney
论文数: 0引用数: 0
h-index: 0
机构:
Kings Coll London, Ctr Med Law & Eth, Dickson Poon Sch Law, London SE5 9PJ, EnglandKings Coll London, Cicely Saunders Inst, Dept Palliat Care Policy & Rehabil, London SE5 9PJ, England
Lewis, Penney
Speck, Peter
论文数: 0引用数: 0
h-index: 0
机构:
Kings Coll London, Cicely Saunders Inst, Dept Palliat Care Policy & Rehabil, London SE5 9PJ, EnglandKings Coll London, Cicely Saunders Inst, Dept Palliat Care Policy & Rehabil, London SE5 9PJ, England
Speck, Peter
Benalia, Hamid
论文数: 0引用数: 0
h-index: 0
机构:
Kings Coll London, Cicely Saunders Inst, Dept Palliat Care Policy & Rehabil, London SE5 9PJ, EnglandKings Coll London, Cicely Saunders Inst, Dept Palliat Care Policy & Rehabil, London SE5 9PJ, England
Benalia, Hamid
Preston, Nancy J.
论文数: 0引用数: 0
h-index: 0
机构:
Univ Manchester, Sch Nursing Midwifery & Social Work, Manchester, Lancs, England
Univ Lancaster, Fac Hlth & Med, Int Observ End Life Care, Lancaster LA1 4YW, EnglandKings Coll London, Cicely Saunders Inst, Dept Palliat Care Policy & Rehabil, London SE5 9PJ, England
Preston, Nancy J.
Grande, Gunn E.
论文数: 0引用数: 0
h-index: 0
机构:
Univ Manchester, Sch Nursing Midwifery & Social Work, Manchester, Lancs, EnglandKings Coll London, Cicely Saunders Inst, Dept Palliat Care Policy & Rehabil, London SE5 9PJ, England
Grande, Gunn E.
Short, Vicky
论文数: 0引用数: 0
h-index: 0
机构:
Univ Manchester, Sch Nursing Midwifery & Social Work, Manchester, Lancs, EnglandKings Coll London, Cicely Saunders Inst, Dept Palliat Care Policy & Rehabil, London SE5 9PJ, England
Short, Vicky
Owen-Jones, Eleanor
论文数: 0引用数: 0
h-index: 0
机构:
Univ Manchester, Sch Nursing Midwifery & Social Work, Manchester, Lancs, EnglandKings Coll London, Cicely Saunders Inst, Dept Palliat Care Policy & Rehabil, London SE5 9PJ, England
Owen-Jones, Eleanor
Todd, Chris J.
论文数: 0引用数: 0
h-index: 0
机构:
Univ Manchester, Sch Nursing Midwifery & Social Work, Manchester, Lancs, EnglandKings Coll London, Cicely Saunders Inst, Dept Palliat Care Policy & Rehabil, London SE5 9PJ, England
Todd, Chris J.
Higginson, Irene J.
论文数: 0引用数: 0
h-index: 0
机构:
Kings Coll London, Cicely Saunders Inst, Dept Palliat Care Policy & Rehabil, London SE5 9PJ, EnglandKings Coll London, Cicely Saunders Inst, Dept Palliat Care Policy & Rehabil, London SE5 9PJ, England
机构:
Childrens Hosp & Med Ctr, Dept Pediat, Omaha, NE USAChildrens Hosp & Med Ctr, Dept Pediat, Omaha, NE USA
Weaver, Meaghann S.
Mooney-Doyle, Kim
论文数: 0引用数: 0
h-index: 0
机构:
Univ Maryland, Sch Nursing, Dept Family & Community Hlth, Baltimore, MD 21201 USAChildrens Hosp & Med Ctr, Dept Pediat, Omaha, NE USA
Mooney-Doyle, Kim
Kelly, Katherine Patterson
论文数: 0引用数: 0
h-index: 0
机构:
George Washington Univ, Sch Med & Hlth Sci, Childrens Natl Hlth Syst, Dept Nursing Sci Profess Practice & Qual, Washington, DC 20052 USAChildrens Hosp & Med Ctr, Dept Pediat, Omaha, NE USA
Kelly, Katherine Patterson
Montgomery, Kathleen
论文数: 0引用数: 0
h-index: 0
机构:
Amer Family Childrens Hosp, Dept Nursing, Madison, WI USAChildrens Hosp & Med Ctr, Dept Pediat, Omaha, NE USA
Montgomery, Kathleen
Newman, Amy R.
论文数: 0引用数: 0
h-index: 0
机构:
Univ Utah, Coll Nursing, Salt Lake City, UT 84112 USA
Med Coll Wisconsin, Childrens Hosp Wisconsin, Milwaukee, WI 53226 USAChildrens Hosp & Med Ctr, Dept Pediat, Omaha, NE USA
Newman, Amy R.
Fortney, Christine A.
论文数: 0引用数: 0
h-index: 0
机构:
Ohio State Univ, Coll Nursing, Martha S Pitzer Ctr Women Children & Youth, Columbus, OH 43210 USAChildrens Hosp & Med Ctr, Dept Pediat, Omaha, NE USA
Fortney, Christine A.
Bell, Cynthia J.
论文数: 0引用数: 0
h-index: 0
机构:
Wayne State Univ, Coll Nursing, Detroit, MI 48202 USAChildrens Hosp & Med Ctr, Dept Pediat, Omaha, NE USA
Bell, Cynthia J.
Spruit, Jessica L.
论文数: 0引用数: 0
h-index: 0
机构:
Wayne State Univ, Coll Nursing, Detroit, MI 48202 USAChildrens Hosp & Med Ctr, Dept Pediat, Omaha, NE USA
Spruit, Jessica L.
Uveges, Melissa Kurtz
论文数: 0引用数: 0
h-index: 0
机构:
Harvard Med Sch, Brigham & Womens Hosp, Ctr Bioeth, Boston, MA 02115 USAChildrens Hosp & Med Ctr, Dept Pediat, Omaha, NE USA
Uveges, Melissa Kurtz
Wiener, Lori
论文数: 0引用数: 0
h-index: 0
机构:
NCI, Ctr Canc Res, NIH, Bethesda, MD 20892 USAChildrens Hosp & Med Ctr, Dept Pediat, Omaha, NE USA
Wiener, Lori
Schmidt, Cynthia M.
论文数: 0引用数: 0
h-index: 0
机构:
Univ Nebraska Med Ctr, McGoogan Lib Med, Omaha, NE USAChildrens Hosp & Med Ctr, Dept Pediat, Omaha, NE USA
Schmidt, Cynthia M.
Madrigal, Vanessa N.
论文数: 0引用数: 0
h-index: 0
机构:
George Washington Univ, Dept Pediat, Childrens Natl Hlth Syst, Div Crit Care Med, Washington, DC 20052 USAChildrens Hosp & Med Ctr, Dept Pediat, Omaha, NE USA
Madrigal, Vanessa N.
Hinds, Pamela S.
论文数: 0引用数: 0
h-index: 0
机构:
George Washington Univ, Childrens Natl Hlth Syst, Dept Nursing Sci Profess Practice & Qual, Washington, DC USA
George Washington Univ, Dept Pediat, Washington, DC 20052 USAChildrens Hosp & Med Ctr, Dept Pediat, Omaha, NE USA