The illness of women and men with sickle cell disease: a Grounded Theory study

被引:4
|
作者
Cordeiro, Rosa Candida [1 ]
Ferreira, Silvia Lucia [2 ]
da Cruz Santos, Ane Caroline [2 ]
机构
[1] Univ Fed Reconcavo Bahia, Escola Enfermagem, Santo Antonio De Jesus, BA, Brazil
[2] Univ Fed Bahia, Escola Enfermagem, BR-40110060 Salvador, BA, Brazil
来源
关键词
Chronic Disease; Anemia; Sickle Cell; Nursing; HEALTH;
D O I
10.1590/0104-1169.0594.2656
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
Objective: to understand the meanings given by women and men with sickle cell disease on the illness experience. Method: analytical study with a qualitative approach, conducted with 17 adults with sickle cell disease using the Theory Based on Data, or Grounded Theory, as theoretical-methodological referential. Data were collected between the years of 2012 and 2013, in an individual in-depth interview. All the interviews were recorded and analyzed according to the Grounded Theory comparative analysis technique. Results: data show four categories which group the experience of illness, the feelings experienced and the path to living with sickle cell disease. Conclusions: it was possible to understand that the experience was built by a process in which these people redefined the meaning of their lives, applying new directions to life and to care regarding the experience of the illness. In the context of chronic disease, the nurse's care is also seen in this study as a foundation, providing attention, directions, and guidance through the required confrontations. Understanding the experience lived by these people, it is possible to enlarge the dimensions and the essence of nursing care required throughout life.
引用
收藏
页码:1113 / 1120
页数:8
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