Novel Data Sharing Agreement to Accelerate Big Data Translational Research Projects in the One Health Sphere

被引:2
|
作者
Staley, Joshua [3 ]
Mazloom, Reza [4 ]
Lowe, Paul [5 ]
Newsum, C. T. [6 ]
Jaberi-Douraki, Majid [4 ]
Riviere, Jim [3 ]
Wyckoff, Gerald J. [1 ,2 ]
机构
[1] Univ Missouri, Sch Biol & Chem Sci, Mol Biol & Biochem, Spencer Hall,Room 522,5009 Rockhill Rd, Kansas City, MO 64110 USA
[2] Univ Missouri, Sch Pharm, Div Pharmacol & Pharmaceut Sci, Kansas City, MO 64110 USA
[3] Kansas State Univ, Vet Biomed Sci, Olathe 22201 West Innovat Dr, Olathe, KS USA
[4] Kansas State Univ, Dept Anat & Physiol, Inst Computat Comparat Med, Manhattan, KS 66506 USA
[5] Kansas State Univ, Off Vice President Res, Manhattan, KS 66506 USA
[6] Aratana Therapeut Inc, 11400 Tomahawk Creek Pkwy 340, Leawood, KS USA
关键词
data sharing; one health; public-private partnership; data analysis; legal issues; translational research; big data;
D O I
10.1016/j.tcam.2019.100367
中图分类号
S85 [动物医学(兽医学)];
学科分类号
0906 ;
摘要
When conducting translational research, the ability to share data generated by researchers and clinicians working with for-profit companies is essential, particularly in cases that involve "one health" data (i.e., data that could come from human, animal, or environmental sources). The 1DATA Project, a collaboration between Kansas State University and the University of Missouri, has examined and overcome some of the barriers to sharing this information for "big data" projects. This article discusses some of the obstacles we encountered, and the ways those obstacles can be surmounted via a novel form of Master Sharing Agreement. Developed in collaboration with industry partners, it is presented here as a template for expediting future one health work. (C) 2019 Elsevier Inc. All rights reserved.
引用
收藏
页数:6
相关论文
共 50 条
  • [1] Responsible data sharing in a big data-driven translational research platform: lessons learned
    Kalkman, S.
    Mostert, M.
    Udo-Beauvisage, N.
    van Delden, J. J.
    van Thiel, G. J.
    BMC MEDICAL INFORMATICS AND DECISION MAKING, 2019, 19 (01)
  • [2] Responsible data sharing in a big data-driven translational research platform: lessons learned
    S. Kalkman
    M. Mostert
    N. Udo-Beauvisage
    J. J. van Delden
    G. J. van Thiel
    BMC Medical Informatics and Decision Making, 19
  • [3] Data Policy and Data Sharing Agreement in the LifeWatchGreece Research Infrastructure
    Chatzinikolaou, Eva
    Faulwetter, Sarah
    Mavraki, Dimitra
    Bourtzis, Tilemachos
    Arvanitidis, Christos
    BIODIVERSITY DATA JOURNAL, 2016, 4
  • [4] A novel clinical database for sharing data among projects and research centers
    Wetzel, GT
    Tanabe, TM
    Komanapalli, CB
    PEDIATRIC RESEARCH, 2000, 47 (04) : 52A - 52A
  • [5] Genomic data sharing for translational research and diagnostics
    Peter N Robinson
    Genome Medicine, 6
  • [6] Genomic data sharing for translational research and diagnostics
    Robinson, Peter N.
    GENOME MEDICINE, 2014, 6
  • [7] Big data in basic and translational cancer research
    Peng Jiang
    Sanju Sinha
    Kenneth Aldape
    Sridhar Hannenhalli
    Cenk Sahinalp
    Eytan Ruppin
    Nature Reviews Cancer, 2022, 22 : 625 - 639
  • [8] Big data in basic and translational cancer research
    Jiang, Peng
    Sinha, Sanju
    Aldape, Kenneth
    Hannenhalli, Sridhar
    Sahinalp, Cenk
    Ruppin, Eytan
    NATURE REVIEWS CANCER, 2022, 22 (11) : 625 - 639
  • [9] BETTER DATA INTEGRATION AND SHARING CAN ACCELERATE RESEARCH AND POLICY FOR GLOBAL POPULATION HEALTH
    Van Panhuis, Willem G.
    Paul, Proma
    Emerson, Claudia
    Wilder, Richard
    Herbst, Abraham J.
    Heymann, David
    AMERICAN JOURNAL OF TROPICAL MEDICINE AND HYGIENE, 2015, 93 (04): : 205 - 205
  • [10] The Project Data Sphere Initiative: Accelerating Cancer Research by Sharing Data
    Green, Angela K.
    Reeder-Hayes, Katherine E.
    Corty, Robert W.
    Basch, Ethan
    Milowsky, Amathew I.
    Dusetzina, Stacie B.
    Bennett, Antonia V.
    Wood, Dwilliam A.
    ONCOLOGIST, 2015, 20 (05): : 464 - U24