Barriers and facilitators to research participation among adults, and parents of children with sickle cell disease: A trans-regional survey

被引：6
|
作者：
Cronin, Robert M. [1 ,2 ,3 ]
Hankins, Jane S. [4 ]
Adams-Graves, Patricia [5 ]
Thompson, Alexis A. [6 ]
Kalinyak, Karen [7 ]
Byrd, Jeannie [8 ]
McClain, Brandi [8 ]
Kassim, Adetola [9 ]
DeBaun, Michael [8 ]
Treadwell, Marsha [10 ]
机构：
[1] Vanderbilt Univ, Med Ctr, Dept Biomed Informat, 2525 West End,Suite 1475, Nashville, TN 37203 USA
[2] Vanderbilt Univ, Med Ctr, Dept Internal Med, 2525 West End,Suite 1475, Nashville, TN USA
[3] Vanderbilt Univ, Med Ctr, Dept Pediat, 2525 West End,Suite 1475, Nashville, TN 37232 USA
[4] St Jude Childrens Res Hosp, Dept Hematol, 332 N Lauderdale St, Memphis, TN 38105 USA
[5] Univ Tennessee, Ctr Hlth Sci, Dept Gen Internal Med, Memphis, TN 38163 USA
[6] Northwestern Univ, Dept Med, Dept Pediat, Chicago, IL 60611 USA
[7] Cincinnati Childrens Hosp, Canc & Blood Dis Inst, Div Hematol, Cincinnati, OH USA
[8] Vanderbilt Univ, Med Ctr, Vanderbilt Meharry Ctr Excellence Sickle Cell Dis, Dept Pediat,Div Hematol Oncol, Nashville, TN USA
[9] Vanderbilt Univ, Med Ctr, Vanderbilt Meharry Ctr Excellence Sickle Cell Dis, Dept Med,Div Hematol Oncol, Nashville, TN USA
[10] UCSF Benioff Childrens Hosp, Dept Hematol Oncol, Oakland, CA USA
来源：
AMERICAN JOURNAL OF HEMATOLOGY | 2016年 / 91卷 / 10期
关键词：
D O I：
10.1002/ajh.24483
中图分类号：
R5 [内科学];
学科分类号：
1002 ; 100201 ;
摘要：
引用
收藏
页码：E461 / E462
页数：3
相关论文
共 47 条
  • [1] Barriers and Facilitators of Use of Hydroxyurea among Children with Sickle Cell Disease: Experiences of Stakeholders in Tanzania
    Kilonzi, Manase
    Mlyuka, Hamu J.
    Felician, Fatuma Felix
    Mwakawanga, Dorkasi L.
    Chirande, Lulu
    Myemba, David T.
    Sambayi, Godfrey
    Mutagonda, Ritah F.
    Mikomangwa, Wigilya P.
    Ndunguru, Joyce
    Jonathan, Agnes
    Ruggajo, Paschal
    Minja, Irene Kida
    Balandya, Emmanuel
    Makani, Julie
    Sirili, Nathanael
    HEMATO, 2021, 2 (04): : 713 - 726
  • [2] HYDROXYUREA ADHERENCE RATES AND BARRIERS AMONG PARENTS OF CHILDREN AND ADOLESCENTS WITH SICKLE CELL DISEASE
    Badawy, Sherif
    ANNALS OF BEHAVIORAL MEDICINE, 2019, 53 : S140 - S140
  • [3] Barriers and facilitators to clinical trial participation among parents of children with pediatric neuromuscular disorders
    Peay, Holly L.
    Biesecker, Barbara B.
    Wilfond, Benjamin S.
    Jarecki, Jill
    Umstead, Kendall L.
    Escolar, Diana M.
    Tibben, Aad
    CLINICAL TRIALS, 2018, 15 (02) : 139 - 148
  • [4] Barriers and Facilitators of Advance Care Planning for Older Adults with Sickle Cell Disease
    Oyedeji, Charity I.
    Oyesanya, Tolulpe
    Gray, Nathan
    Strouse, John J.
    BLOOD, 2020, 136
  • [5] Provider prescription of hydroxyurea in youth and adults with sickle cell disease: A review of prescription barriers and facilitators
    Pizzo, Alex
    Porter, Jerlym S.
    Carroll, Yvonne
    Burcheri, Adam
    Smeltzer, Matthew P.
    Beestrum, Molly
    Nwosu, Chinonyelum
    Badawy, Sherif M.
    Hankins, Jane S.
    Klesges, Lisa M.
    Alberts, Nicole M.
    BRITISH JOURNAL OF HAEMATOLOGY, 2023, 203 (05) : 712 - 721
  • [6] Provider barriers to hydroxyurea use in adults with sickle cell disease: A survey of the sickle cell disease adult provider network
    Lanzkron, Sophie
    Haywood, Carlton, Jr.
    Hassell, Kathryn L.
    Rand, Cynthia
    JOURNAL OF THE NATIONAL MEDICAL ASSOCIATION, 2008, 100 (08) : 968 - 973
  • [7] Coping and Coping Assistance Among Children With Sickle Cell Disease and Their Parents
    Hildenbrand, Aimee K.
    Barakat, Lamia P.
    Alderfer, Melissa A.
    Marsac, Meghan L.
    JOURNAL OF PEDIATRIC HEMATOLOGY ONCOLOGY, 2015, 37 (01) : 25 - 34
  • [8] Economic burden of sickle cell disease among children and adults
    Hartzema, Abraham G.
    Kauf, Teresa L.
    Coates, Thomas D.
    Huazhi, Liu
    Mody-Patel, Nakita
    BLOOD, 2007, 110 (11) : 292A - 292A
  • [9] Understanding facilitators of research participation among adults with self-reported chronic pain - a survey examining hypothetical research participation
    Start, Charles
    Mcbride, Meagan
    Zhu, Guohao
    Shaikh, Sana
    Pierce, Jennifer
    BMC MEDICAL RESEARCH METHODOLOGY, 2024, 24 (01)
  • [10] Understanding facilitators of research participation among adults with self-reported chronic pain – a survey examining hypothetical research participation
    Charles Start
    Meagan McBride
    Guohao Zhu
    Sana Shaikh
    Jennifer Pierce
    BMC Medical Research Methodology, 24
12345