Pediatric palliative care nursing

被引:27
|
作者
Akard, Terrah Foster [1 ]
Hendricks-Ferguson, Verna L. [2 ]
Gilmer, Mary Jo [1 ]
机构
[1] Vanderbilt Univ, Sch Nursing & Med Pediat, 221 Kirkland Hall, Nashville, TN 37235 USA
[2] St Louis Univ, Sch Nursing, St Louis, MO 63103 USA
基金
美国国家卫生研究院;
关键词
Hospice and palliative care nursing; palliative care; palliative nursing; pediatric nursing; OF-LIFE DECISIONS; BEREAVED PARENTS; PET OWNERSHIP; CHILDREN; INTERVENTION; CANCER; END; COMMUNICATION; TALKING; DEATH;
D O I
10.21037/apm.2018.06.01
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Palliative care is patient- and family-centered care that enhances quality of life throughout the illness trajectory and can ease the symptoms, discomfort, and stress for children living with life-threatening conditions and their families. This paper aims to increase nurses' and other healthcare providers' awareness of selected recent research initiatives aimed at enhancing life and decreasing suffering for these children and their families. Topics were selected based on identified gaps in the pediatric palliative care literature. Published articles and authors' ongoing research were used to describe selected components of pediatric palliative nursing care including (I) examples of interventions (legacy and animal-assisted interventions); (II) international studies (parent-sibling bereavement, continuing bonds in Ecuador, and circumstances surrounding deaths in Honduras); (III) recruitment methods; (IV) communication among pediatric patients, their parents, and the healthcare team; (V) training in pediatric palliative care; (VI) nursing education; and (VII) nurses' role in supporting the community. Nurses are in ideal roles to provide pediatric palliative care at the bedside, serve as leaders to advance the science of pediatric palliative care, and support the community.
引用
收藏
页码:S39 / S48
页数:10
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