The ethical implications of paradoxical lucidity in persons with dementia

被引:9
|
作者
Ney, David B. [1 ,2 ]
Peterson, Andrew [2 ,3 ]
Karlawish, Jason [2 ,4 ,5 ,6 ]
机构
[1] Thomas Jefferson Univ, Sidney Kimmel Med Coll, 1025 Walnut St, Philadelphia, PA 19107 USA
[2] Penn Memory Ctr, Penn Program Precis Med Brain, Philadelphia, PA USA
[3] George Mason Univ, Inst Philosophy & Publ Policy, Dept Philosophy, Fairfax, VA 22030 USA
[4] Univ Penn, Perelman Sch Med, Dept Med, Penn Memory Ctr, Philadelphia, PA 19104 USA
[5] Univ Penn, Perelman Sch Med, Dept Med Eth & Hlth Policy, Penn Memory Ctr, Philadelphia, PA 19104 USA
[6] Univ Penn, Perelman Sch Med, Dept Neurol, Penn Memory Ctr, Philadelphia, PA 19104 USA
关键词
caregiver; dementia; ethics; family; personhood; TERMINAL LUCIDITY; AMBIGUOUS LOSS;
D O I
10.1111/jgs.17484
中图分类号
R592 [老年病学]; C [社会科学总论];
学科分类号
03 ; 0303 ; 100203 ;
摘要
This case report describes the ethical implications of paradoxical lucidity in persons with severe stage dementia. Paradoxical lucidity describes an episode of unexpected communication or connectedness in a person who is believed to be noncommunicative due to a progressive and pathological process that causes dementia. A caregiver who witnesses an event of paradoxical lucidity may experience it as ethically and emotionally transformative. We provide an ethical framework for addressing this event in clinical practice. The framework addresses clinician interactions with the patient, caregiver, and family to improve understanding of paradoxical lucidity and to enhance patient care, caregiver well-being, and decision-making. Participants for this case study consented to having the case published. Participant names are changed to protect confidentiality.
引用
收藏
页码:3617 / 3622
页数:6
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