Developmental and Psychosocial Issues in Cystic Fibrosis

被引:37
|
作者
Ernst, Michelle M. [1 ,3 ]
Johnson, Mark C. [2 ,3 ]
Stark, Lori J. [1 ,3 ]
机构
[1] Univ Cincinnati, Coll Med, Cincinnati Childrens Hosp, Div Behav Med & Clin Psychol,Med Ctr, Cincinnati, OH 45229 USA
[2] Univ Cincinnati, Coll Med, Cincinnati Childrens Hosp, Div Child & Adolescent Psychiat,Med Ctr, Cincinnati, OH 45229 USA
[3] Univ Cincinnati, Coll Med, Cincinnati Childrens Hosp, Dept Pediat,Med Ctr, Cincinnati, OH 45229 USA
关键词
Cystic fibrosis; Chronic illness; Adherence; Quality of life; Coping; QUALITY-OF-LIFE; RANDOMIZED CLINICAL-TRIAL; CHRONIC ILLNESS; TREATMENT ADHERENCE; PRESCHOOL-CHILDREN; YOUNG-ADULTS; BEHAVIORAL INTERVENTIONS; CHEST PHYSIOTHERAPY; CROSS-INFECTION; ADOLESCENTS;
D O I
10.1016/j.chc.2010.01.004
中图分类号
R749 [精神病学];
学科分类号
100205 ;
摘要
Cystic fibrosis (CF) is a multisystemic life-limiting genetic disorder, primarily affecting respiratory functioning. Most patients with CF are diagnosed by 2 years of age, and the current median predicted survival rate is 37.4 years old, with 95% of patients dying from complications related to pulmonary infection. Given the chronic, progressive, and disabling nature of CF, multiple treatments are prescribed, most on a daily basis. Thus, this illness requires children, with the aid of their families, to adopt multiple health-related behaviors in addition to managing more typical developmental demands. The morbidity and mortality factors pose cognitive, emotional, and behavioral challenges for many children with CF and their families. This article applies a developmental perspective to describing the psychosocial factors affecting psychological adjustment and health-related behaviors relevant to infants, preschool and school-age children, and adolescents with CF. Topics particularly pertinent to developmental periods and medical milestones are noted, with clinical implications highlighted.
引用
收藏
页码:263 / +
页数:22
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