Amyotrophic lateral sclerosis patients' quality of life and their caregiver burden during COVID-19 pandemic

被引：1
|
作者：
Bombaci, Alessandro [1 ]
Giusiano, Silvia [2 ]
Peotta, Laura [2 ]
Iazzolino, Barbara [2 ]
Mastro, Enza [2 ]
Arcari, Martina [2 ]
Palumbo, Francesca [3 ]
Torrieri, Maria Claudia [1 ]
Grassano, Maurizio [1 ]
Cabras, Sara [1 ]
Di Pede, Francesca [1 ]
De Mattei, Filippo [1 ]
Matteoni, Enrico [1 ]
Solero, Luca [1 ]
Daviddi, Margherita [1 ]
Salamone, Paolina [1 ]
Fuda, Giuseppe [1 ]
Manera, Umberto [4 ]
Canosa, Antonio [1 ]
Chio, Adriano [5 ]
Calvo, Andrea [6 ]
Moglia, Cristina [3 ]
Vasta, Rosario [1 ]
机构：
[1] Univ Turin, Als Ctr, Dept Neurosci, Rita Levi Montalcini, Turin, Italy
[2] Univ Turin, Dept Neurosci, Rita Levi Montalcini, Turin, Italy
[3] Univ Turin, Dept Neurol, Rita Levi Montalcini, Turin, Italy
[4] ALS Ctr, Dept Neurosci, Rita Levi Montalcini, Turin, Italy
[5] Univ Turin, Dept Neurosci, Rita Levi Montacini, Turin, Italy
[6] Univ Turin, Dept Neurosci Rita Levi Montacini, Turin, Italy
来源：
JOURNAL OF THE NEUROLOGICAL SCIENCES | 2021年 / 429卷
关键词：
D O I：
10.1016/j.jns.2021.117701
中图分类号：
R74 [神经病学与精神病学];
学科分类号：
摘要：
117701
引用
收藏
页数：1
相关论文
共 50 条
  • [1] Amyotrophic lateral sclerosis caregiver burden and patients' quality of life during COVID-19 pandemic
    Giusiano, Silvia
    Laura, Peotta
    Iazzolino, Barbara
    Mastro, Enza
    Arcari, Martina
    Palumbo, Francesca
    Torrieri, Maria Claudia
    Bombaci, Alessandro
    Grassano, Maurizio
    Cabras, Sara
    Di Pede, Francesca
    DeMattei, Filippo
    Matteoni, Enrico
    Solero, Luca
    Daviddi, Margherita
    Salamone, Paolina
    Fuda, Giuseppe
    Manera, Umberto
    Canosa, Antonio
    Chio, Adriano
    Calvo, Andrea
    Moglia, Cristina
    Vasta, Rosario
    AMYOTROPHIC LATERAL SCLEROSIS AND FRONTOTEMPORAL DEGENERATION, 2022, 23 (1-2) : 146 - 148
  • [2] Quality of Life in Amyotrophic Lateral Sclerosis Patients and Care Burden of Caregivers in Sardinia during COVID-19 Pandemic
    Gentili, Davide
    Deiana, Giovanna
    Chessa, Vanna
    Calabretta, Annalisa
    Marras, Elisabetta
    Solinas, Costanzo
    Gugliotta, Carmelo
    Azara, Antonio
    HEALTHCARE, 2023, 11 (11)
  • [3] Caregiver burden and quality of life of patients with amyotrophic lateral sclerosis in India
    Thomas, Priya Treesa
    Warrier, Manjusha G.
    Sadasivan, Arun
    Balasubramanium, Bhuvaneshwari
    Preethish-Kumar, Veeramani
    Nashi, Saraswati
    Polavarapu, Kiran
    Krishna, Gopalkrishna
    Vengalil, Seena
    Rajaram, Prakashi
    Nalini, Atchayaram
    AMYOTROPHIC LATERAL SCLEROSIS AND FRONTOTEMPORAL DEGENERATION, 2018, 19 (7-8) : 606 - 610
  • [4] Telehealth approach for amyotrophic lateral sclerosis patients: the experience during COVID-19 pandemic
    De Marchi, Fabiola
    Sarnelli, Maria Francesca
    Serioli, Marcella
    De Marchi, Ilaria
    Zani, Ermes
    Bottone, Nicola
    Ambrosini, Serena
    Garone, Raffaella
    Cantello, Roberto
    Mazzini, Letizia
    Solara, Valentina
    Biroli, Giampaolo
    Riso, Sergio
    Vercelli, Renato
    Massara, Maurilio
    ACTA NEUROLOGICA SCANDINAVICA, 2021, 143 (05): : 489 - 496
  • [5] Amyotrophic lateral sclerosis progression in the year of the COVID-19 pandemic
    De Marchi, Fabiola
    Gallo, Chiara
    Sarnelli, Maria Francesca
    De Marchi, Ilaria
    Saraceno, Massimo
    Cantello, Roberto
    Mazzini, Letizia
    JOURNAL OF THE NEUROLOGICAL SCIENCES, 2021, 429
  • [6] Is caregiver burden of patients with amyotrophic lateral sclerosis related to caregivers' mindfulness, quality of life, and patients' functional level
    Ipek, Lutfiye
    Gencer, Gokce Yagmur Gunes
    JOURNAL OF CLINICAL NEUROSCIENCE, 2024, 126 : 95 - 100
  • [7] Impact of the covid-19 pandemic on amyotrophic lateral sclerosis care in the UK
    Musson, Lucy S.
    Collins, Alexis
    Opie-Martin, Sarah
    Bredin, Andrea
    Hobson, Esther V.
    Barkhouse, Emily
    Coulson, Mark C.
    Stavroulakis, Theocharis
    Gould, Rebecca L.
    Al-Chalabi, Ammar
    McDermott, Christopher J.
    AMYOTROPHIC LATERAL SCLEROSIS AND FRONTOTEMPORAL DEGENERATION, 2023, 24 (1-2) : 91 - 99
  • [8] Caregivers of patients with amyotrophic lateral sclerosis: investigating quality of life, caregiver burden, service engagement, and patient survival
    Burke, Tom
    Galvin, Miriam
    Pinto-Grau, Marta
    Lonergan, Katie
    Madden, Caoifa
    Mays, Iain
    Carney, Sile
    Hardiman, Orla
    Pender, Niall
    JOURNAL OF NEUROLOGY, 2017, 264 (05) : 898 - 904
  • [9] Caregivers of patients with amyotrophic lateral sclerosis: investigating quality of life, caregiver burden, service engagement, and patient survival
    Tom Burke
    Miriam Galvin
    Marta Pinto-Grau
    Katie Lonergan
    Caoifa Madden
    Iain Mays
    Sile Carney
    Orla Hardiman
    Niall Pender
    Journal of Neurology, 2017, 264 : 898 - 904
  • [10] Triage of Amyotrophic Lateral Sclerosis Patients during the COVID-19 Pandemic: An Application of the D50 Model
    Steinbach, Robert
    Prell, Tino
    Gaur, Nayana
    Stubendorff, Beatrice
    Roediger, Annekathrin
    Ilse, Benjamin
    Witte, Otto W.
    Grosskreutz, Julian
    JOURNAL OF CLINICAL MEDICINE, 2020, 9 (09) : 1 - 14
12345