In-home monitoring of persons with dementia: Ethical guidelines for technology research and development

被引:52
|
作者
Mahoney, Diane F.
Purtilo, Ruth B.
Webbe, Frank M.
Alwan, Maid
Bharucha, Ashok J.
Adlam, Tim D.
Jimison, Holly B.
Turner, Beverly
Becker, S. Ann
机构
[1] MGH Inst Hlth Profess, Grad Nursing Program, Boston, MA USA
[2] Florida Inst Technol, Melbourne, FL 32901 USA
[3] Univ Virginia, Med Automat Res Ctr, Charlottesville, VA USA
[4] Univ Pittsburgh, Sch Med, Western Psychiat Inst & Clin, Pittsburgh, PA USA
[5] Royal United Hosp, Bath Inst Med Engn, Bath BA1 3NG, Avon, England
[6] Oregon Hlth & Sci Univ, Dept Med Informat & Clin Epidemiol, Portland, OR 97201 USA
关键词
technology and aging; gerontechnology; caregiving; institutional review boards; grant reviewers; independent living; translational research;
D O I
10.1016/j.jalz.2007.04.388
中图分类号
R74 [神经病学与精神病学];
学科分类号
摘要
Innovative technologies are rapidly emerging that offer caregivers the support and means to assist older adults with cognitive impairment to continue living "at home." Technology research and development efforts applied to older adults with dementia invoke special grant review and institutional review board concerns, to ensure not only safe but also ethically appropriate interventions. Evidence is emerging, however, that tensions are growing between innovators and reviewers. Reviewers with antitechnology biases are in a position to stifle needed innovation. Technology developers who fail to understand the clinical and caregiving aspects of dementia may design applications that are not in alignment with users' capabilities. To bridge this divide, we offer an analysis of the ethical issues surrounding home monitoring, a model framework, and ethical guidelines for technology research and development for persons with Alzheimer's disease and their caregivers. (C) 2007 The Alzheimer's Association. All rights reserved.
引用
收藏
页码:217 / 226
页数:10
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