Funding Priorities: Autism and the Need for a More Balanced Research Agenda in Canada

被引:17
|
作者
Krahn, Timothy M. [1 ]
Fenton, Andrew [2 ]
机构
[1] Dalhousie Univ, Novel Tech Eth, Fac Med, Halifax, NS B3H 3M6, Canada
[2] Calif State Univ Fresno, Dept Philosophy, Fresno, CA 93740 USA
基金
加拿大健康研究院;
关键词
PUBLIC-HEALTH; SPECTRUM; CHILDREN; PARENTS; SERVICES; QUALITY;
D O I
10.1093/phe/phs027
中图分类号
B82 [伦理学(道德学)];
学科分类号
摘要
The public purse is responsible for funding almost all autism spectrum disorders (ASD) research in Canada (as per Canadian Institutes of Health Research [CIHR]) and for providing some of the existing services and supports for this population. In this article, we consider various reasons why Canada should be concerned to ensure a more equitable distribution of relevant public funding for ASD research than is currently the case to meet the express needs and interests of the diversity of autism stakeholders. As such, we report data to show that CIHR-supported ASD research from the period of 2000-2010 demonstrates a bias focussed on the aetiology of the condition revealing a disproportionate emphasis on only two (Biomedical and Clinical) out of the four research pillars avowed by CIHR, with a comparative lack of fiscal resources committed to Health Systems and Services and Population and Public Health research. We advance certain normative and prudential reasons for funding more Health Systems and Services and Population and Public Health ASD research in Canada. In our view, this would seem to follow from CIHR's official mandate 'as a flexible mechanism that will continually align health research funding with changes in the manner in which health problems and opportunities are identified, understood and addressed'.
引用
收藏
页码:296 / 310
页数:15
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