Quality of life of patients with end-stage renal disease at various stages of the illness

This study aimed to examine the quality of life of patients undergoing different types of treatment for End Stage Renal Disease at various points in the course of the disease. The theoretical model that guided the study was based on the work of Rolland (1987) and Wilson and Clearly (1995). Subjects were 72 patients at the largest nephrology center in Israel. Instruments included the SF-36 Health Survey (version 1.0) and Parfrey's health questionnaire for End Stage Renal Disease. The findings indicate that the negative effects of the disease on quality of life can be observed in the pre-dialysis stage, and that the strongest predictor of quality of life were patients' symptom reports, independent of objective indicators of their health state. Social workers play a key role in aiding patients and then families to adjust to the disease and its treatment prior to starting dialysis, and in bringing the importance of patients' subjective assessments to the attention of the treatment team. (C) 2003 by The Haworth Press, Inc. All rights reserved.