Locked-in syndrome (LIS);
Amyotrophic lateral sclerosis (ALS);
Paralysis;
Self;
Brain-computer interfaces (BCI);
Personhood;
Quality of life (QOL);
Disorders of consciousness (DOC);
Medical anthropology;
Phenomenology;
Chronic illness;
Illness narratives;
Disability studies;
Biomedical ethics;
Neuroethics;
D O I:
10.1007/s12152-019-09420-9
中图分类号:
B82 [伦理学(道德学)];
学科分类号:
摘要:
The existential situation of persons who suffer from the locked-in syndrome (LIS) raises manifold issues significant to medical anthropology, phenomenology, biomedical ethics, and neuroethics that have not yet been systematically explored. The present special issue ofNeuroethicsillustrates the joint effort of a consolidating network of scholars from various disciplines in Europe, North America and Japan to go in that direction, and to explore LIS beyond clinical studies and quality of life assessments.