Validation of the Food Allergy Quality of Life-Parental Burden Questionnaire in the UK

被引:32
|
作者
Knibb, Rebecca C. [1 ,2 ]
Stalker, Carol [1 ]
机构
[1] Univ Derby, Dept Psychol, Derby DE22 1GB, England
[2] Univ Derby, Fac Educ Hlth & Sci, Sch Sci, Derby DE22 1GB, England
关键词
Food allergy; Parental burden; Quality of life; Validity; Reliability; OF-LIFE; PEANUT ALLERGY; HEALTH-STATUS; CHILDREN; FAMILIES; IMPACT; PERCEPTIONS;
D O I
10.1007/s11136-012-0295-3
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Food allergy can have a profound effect on quality of life (QoL) of the family. The Food Allergy Quality of Life-Parental Burden Questionnaire (FAQL-PB) was developed on a US sample to assess the QoL of parents with food allergic children. The aim of this study was to examine the reliability and validity of the FAQL-PB in a UK sample and to assess the effect of asking about parental burden in the last week compared with parental burden in general, with no time limit for recall given. A total of 1,200 parents who had at least one child with food allergy were sent the FAQL-PB and the Child Health Questionnaire (CHQ-PF50); of whom only 63 % responded. Factor analysis of the FAQL-PB revealed two factors: limitations on life and emotional distress. The total scale and the two sub-scales had high internal reliability (all alpha > 0.85). There were small to moderate but significant correlations between total FAQL-PB scores and health and parental impact measures on the CHQ-PF50 (p < 0.01). Significantly greater parental burden was reported for the no-time limited compared with the time-limited version (p < 0.01). The FAQL-PB is a reliable and valid measure for use in the UK. The scale could be used in clinic to assess the physical and emotional quality of life in addition to the impact on total quality of life.
引用
收藏
页码:1841 / 1849
页数:9
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