Multi-Centre Audit Of Myotonic Dystrophy In the UK: How Can We Improve Access to Care?

被引:0
|
作者
Hewamadduma, Channa [1 ]
Lilleker, James [2 ]
Kelly, Phillip [3 ]
White, Isobel [4 ]
Whiter, Douglas [4 ]
Islam, Mahjabin [4 ]
Campbell, Paul [3 ]
Mehboob, Sadaf [5 ]
Vonberg, Frederick [6 ]
Shanmugarajah, Priya [7 ]
Grote, Helen [6 ]
Viegas, Stuart [8 ]
Turner, Christopher [9 ]
机构
[1] Univ Sheffield, Sheffield Inst Translat Neurosci, Neurosci, Sheffield, S Yorkshire, England
[2] Univ Manchester, Manchester, Lancs, England
[3] Salford Royal Hosp, Salford, Lancs, England
[4] Royal Hallamshire Hosp Sheffield, Sheffield, S Yorkshire, England
[5] LTHT, Leeds, W Yorkshire, England
[6] Chelsea & Westminister NHS Trust, London, England
[7] Leeds Gen Infirm, Neurol, Leeds, W Yorkshire, England
[8] Imperial Coll, London, England
[9] UCL, London, England
关键词
D O I
10.1212/WNL.0000000000203882
中图分类号
R74 [神经病学与精神病学];
学科分类号
摘要
S11.001
引用
收藏
页数:4
相关论文
共 50 条
  • [1] MULTI-CENTRE AUDIT OF MYOTONIC DYSTROPHY CARE IN UK: IS IT THE TIME FOR NATIONAL RECOMMENDATIONS?
    Litesh, Mohit
    Campbell, Paul R.
    Mehboob, Sadaf
    Vonberg, Frederick
    Koh, Woon Senn
    Kelly, Phillip
    Shanmugarajah, Priya
    Viegas, Stuart
    Lilleker, James B.
    Hewamadduma, Channa
    JOURNAL OF NEUROLOGY NEUROSURGERY AND PSYCHIATRY, 2022, 93 (09):
  • [2] How can we improve the experiences of patients and families who request medical assistance in dying? A multi-centre qualitative study
    Oczkowski, Simon J. W.
    Crawshaw, Diane E.
    Austin, Peggy
    Versluis, Donald
    Kalles-Chan, Gaelen
    Kekewich, Michael
    Curran, Dorothyann
    Miller, Paul
    Kelly, Michaela
    Wiebe, Ellen
    Frolic, Andrea
    BMC PALLIATIVE CARE, 2021, 20 (01)
  • [3] How can we improve the experiences of patients and families who request medical assistance in dying? A multi-centre qualitative study
    Simon J. W. Oczkowski
    Diane E. Crawshaw
    Peggy Austin
    Donald Versluis
    Gaelen Kalles-Chan
    Michael Kekewich
    Dorothyann Curran
    Paul Miller
    Michaela Kelly
    Ellen Wiebe
    Andrea Frolic
    BMC Palliative Care, 20
  • [4] Are we documenting cardiovascular risk in patients with rheumatoid arhritis? A multi-centre audit
    Holroyd, C. R.
    Scott-Russell, A. M.
    Cole, Z. A.
    Rajagopal, V.
    RHEUMATOLOGY, 2007, 46 : I95 - I96
  • [5] The challenges of implementing a multi-centre audit of end-of-life care in care homes
    Levy, Jean
    Kinley, Julie
    Conway, Frances
    INTERNATIONAL JOURNAL OF PALLIATIVE NURSING, 2016, 22 (11) : 534 - 540
  • [6] Child and Adolescent Mental Health: How can we help improve access to care?
    Clausen, Carolyn E.
    Skokauskas, Norbert
    JOURNAL OF INDIAN ASSOCIATION FOR CHILD AND ADOLESCENT MENTAL HEALTH, 2018, 14 (01): : 10 - 18
  • [7] Approval times for a multi-centre diabetes study in UK primary care
    Chester, P.
    Khunti, K.
    DIABETIC MEDICINE, 2012, 29 (04) : 554 - 555
  • [8] The use of combination advanced therapies in psoriatic arthritis: results from a UK multi-centre audit
    Jethwa, Hannah
    Gudu, Tania
    Coates, Laura C.
    Helliwell, Philip S.
    Tillett, William
    Abuelmagd, Abdalla
    Andev, Rajinder S.
    Ashraf, Madiha
    Baqai, Tanya
    Choy, Ernest
    Das, Dhivya
    Gullick, Nicola
    Heighton, Catherine
    Kinder, Alison
    Laxminarayan, Ramasharan
    Mittal, Gayatri
    Morris, Penelope
    Mukherjee, Sandeep
    Nandagudi, Anupama
    Rangaraj, Satyapal
    Sharma, Poonam
    Temple, Hoda
    Traub, Beverly
    Paisal, Vishal
    Hum, Ryan
    Vivekanantham, Arani
    Wilson, Robert
    Jadon, Deepak
    RHEUMATOLOGY, 2025,
  • [9] How can we improve the care of paediatric trauma?
    Isabel Iglesias-Bouzas, Maria
    Serrano Gonzalez, Ana
    ANALES DE PEDIATRIA, 2017, 87 (06): : 299 - 300
  • [10] How Can We Improve the Efficiency of Specialty Care?
    John N. Mafi
    Samuel T. Edwards
    Journal of General Internal Medicine, 2016, 31 : 1267 - 1269