Assessing needs and perceptions of research participation in pediatric onset multiple sclerosis: a multi-stakeholder survey

被引:0
|
作者
Gambrah-Lyles, C.
Loud, S.
Chitnis, T.
Casper, Charles T.
Harris, Y.
Mar, S.
机构
关键词
Pediatric Demyelinating Disease; Neuroimmunology;
D O I
暂无
中图分类号
R74 [神经病学与精神病学];
学科分类号
摘要
PL2-2
引用
收藏
页码:S30 / S31
页数:2
相关论文
共 29 条
  • [1] Assessing Needs and Perceptions of Research Participation in Pediatric-Onset Multiple Sclerosis: A Multistakeholder Survey
    Gambrah-Lyles, Claudia
    Kannan, Varun
    Lotze, Tim
    Abrams, Aaron
    Schreiner, Teri
    Rodriguez, Moses
    Casper, T. Charles
    Rose, John W.
    Gorman, Mark P.
    Chitnis, Tanuja
    Loud, Sara
    Wheeler, Yolanda
    Mar, Soe
    PEDIATRIC NEUROLOGY, 2024, 151 : 115 - 120
  • [2] MULTI-STAKEHOLDER SURVEY OF COMPARATIVE EFFECTIVENESS RESEARCH PERCEPTIONS
    Cummins, G.
    Duong, A.
    Doyle, J.
    VALUE IN HEALTH, 2011, 14 (07) : A359 - A359
  • [3] A multi-stakeholder survey on multiple sclerosis multidisciplinary care: The situation in Belgium and lessons for the global community
    Van Hijfte, L.
    Cambron, M.
    Capron, B.
    Dachy, B.
    Decoo, D.
    Dive, D.
    Dubois, B.
    El Sankari, S.
    London, F.
    Perrotta, G.
    Popescu, V.
    Van Pesch, V.
    Van Wijmeersch, B.
    Willekens, B.
    Laureys, G.
    MULTIPLE SCLEROSIS JOURNAL, 2022, 28 (3_SUPPL) : 402 - 403
  • [4] What determines participation in multi-stakeholder partnerships? Assessing sustainability awareness and knowledge
    Enechi, Okechukwu
    Pattberg, Philipp
    DISCOVER SUSTAINABILITY, 2025, 6 (01):
  • [5] Multi-stakeholder participation for successful implementation of applied research projects in Africa
    Mganga, Kevin Z. Z.
    Kaindi, Eric
    Bosma, Luwieke
    Amollo, Kevin O. O.
    Munyoki, Bobsammy
    Kioko, Theophilus
    Kadenyi, Nancy
    Musyoki, Gilbert K. K.
    Wambua, Stephen M. M.
    Ndathi, Aphaxard J. N.
    van Steenbergen, Frank
    Musimba, Nashon K. R.
    ECOLOGICAL SOLUTIONS AND EVIDENCE, 2023, 4 (02):
  • [6] The multiple sclerosis data alliance: a multi-stakeholder approach to scale-up health data research
    Peeters, L.
    MULTIPLE SCLEROSIS JOURNAL, 2019, 25 : 774 - 774
  • [7] Factors influencing participation dynamics in research for development interventions with multi-stakeholder platforms: A metric approach to studying stakeholder participation
    Sartas, Murat
    van Asten, Piet
    Schut, Marc
    McCampbell, Mariette
    Awori, Moureen
    Muchunguzi, Perez
    Tenywa, Moses
    Namazzi, Sylvia
    Amat, Ana Sole
    Thiele, Graham
    Proietti, Claudio
    Devaux, Andre
    Leeuwis, Cees
    PLOS ONE, 2019, 14 (11):
  • [8] Multi-stakeholder analysis of needs, perceptions, and sociocultural influences on multipurpose prevention technologies (MPT) in India
    Shewale, Suhas
    Bangar, Sampada
    Chandhiok, Nomita
    Subramanian, Thilakavathi
    Angolkar, Mubashir
    Katendra, Tumanlal
    Sahay, Seema
    BMC PUBLIC HEALTH, 2024, 24 (01)
  • [9] Assessing no evidence of disease activity in pediatric onset multiple sclerosis
    Feng, J.
    Barney, B.
    Waltz, M.
    Casper, T. C.
    Rensel, M.
    MULTIPLE SCLEROSIS JOURNAL, 2020, 26 (3_SUPPL) : 40 - 40
  • [10] Multiple Sclerosis Data Alliance - A global multi-stakeholder collaboration to scale-up real world data research
    Peeters, Liesbet M.
    Parciak, Tina
    Kalra, Dipak
    Moreau, Yves
    Kasilingam, Elisabeth
    van Galen, Pieter
    Thalheim, Christoph
    Uitdehaag, Bernard
    Vermersch, Patrick
    Hellings, Niels
    Stinissen, Piet
    Van Wijmeersch, Bart
    Ardeshirdavani, Amin
    Pirmani, Ashkan
    De Brouwer, Edward
    Bauer, Christian Robert
    Krefting, Dagmar
    Ribbe, Stephanie
    Middleton, Rod
    Stahmann, Alexander
    Comi, Giancarlo
    MULTIPLE SCLEROSIS AND RELATED DISORDERS, 2021, 47