Multidisciplinary management and care in rare neuromuscular disorders: A call for action

被引:0
|
作者
Orstavik, Kristin [1 ]
Rosenberger, Andreas Dybesland [2 ]
Fossmo, Hanne Ludt [1 ,3 ]
Nordstrom, Marianne [1 ,4 ]
de Visser, Marianne [5 ]
机构
[1] Oslo Univ Hosp, Dept Neurol, Unit Inborn & Hereditary Neuromuscular Disorders, Oslo, Norway
[2] Univ Hosp North Norway, Natl Neuromuscular Ctr Norway, Tromso, Norway
[3] Vikersund Rehabil Ctr, Vikersund, Norway
[4] Frambu Resource Ctr Rare Disorders, Siggerud, Norway
[5] Univ Amsterdam, Locat Univ Amsterdam, Med Ctr, Dept Neurol, Amsterdam, Netherlands
关键词
D O I
10.1111/ene.16265
中图分类号
R74 [神经病学与精神病学];
学科分类号
摘要
引用
收藏
页数:3
相关论文
共 50 条
  • [1] Multidisciplinary Perioperative Care for Children with Neuromuscular Disorders
    Kynes, J. Matthew
    Blakely, Martin
    Furman, Kevin
    Burnette, William B.
    Modes, Katharina B.
    CHILDREN-BASEL, 2018, 5 (09):
  • [2] Neuromuscular Disorders in Children: A Multidisciplinary Approach to Management
    Ramdas, Sithara
    DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY, 2020, 62 (03): : 398 - 398
  • [3] Dysphagia in the intensive care unit: a (multidisciplinary) call to action
    Zuercher, Patrick
    Dziewas, Rainer
    Schefold, Joerg C.
    INTENSIVE CARE MEDICINE, 2020, 46 (03) : 554 - 556
  • [4] Dysphagia in the intensive care unit: a (multidisciplinary) call to action
    Patrick Zuercher
    Rainer Dziewas
    Joerg C. Schefold
    Intensive Care Medicine, 2020, 46 : 554 - 556
  • [5] Diagnosis and management of adult hereditary cardio-neuromuscular disorders: A model for the multidisciplinary care of complex genetic disorders
    Sommerville, R. Brian
    Vincenti, Margherita Guzzi
    Winborn, Kathleen
    Casey, Anne
    Stitziel, Nathan O.
    Connolly, Anne M.
    Mann, Douglas L.
    TRENDS IN CARDIOVASCULAR MEDICINE, 2017, 27 (01) : 51 - 58
  • [6] The clinical management of neuromuscular disorders in intensive care
    Damian, Maxwell S.
    Wijdicks, Eelco P. M.
    NEUROMUSCULAR DISORDERS, 2019, 29 (02) : 85 - 96
  • [7] Neuromuscular disorders in Children. A multidisciplinary approach to management, 1 ed
    Sarkozy, Anna
    NEUROMUSCULAR DISORDERS, 2020, 30 (04) : 351 - 351
  • [8] Cost of Care of Rare Hematologic Disorders in the United States: Call to Action for Policy Supporting Pharmacologic Innovation
    Perez, Pedro Andreu
    Cioffi, Gina
    Karam, Jenny
    Child, Caroline
    Tricta, Fernando
    Chiesi, Giacomo
    BLOOD, 2021, 138
  • [9] Rare skeletal disorders: a multidisciplinary postnatal approach to diagnosis and management
    Walleczek, Nina-Katharina
    Foerster, Kristina
    Seyr, Martina
    Kadrnoska, Nadja
    Kolar, Jennifer
    Wasinger-Brandweiner, Verena
    Vodopiutz, Julia
    WIENER MEDIZINISCHE WOCHENSCHRIFT, 2021, 171 (5-6) : 94 - 101
  • [10] Critical Care in Placenta Accreta Spectrum Disorders-A Call to Action
    Padilla, Cesar R. R.
    Shamshirsaz, Amir A. A.
    Easter, Sarah R. R.
    Hess, Phillip
    Smith, Carly
    El Sharawi, Nadir
    Sandlin, Adam T. T.
    AMERICAN JOURNAL OF PERINATOLOGY, 2023, 40 (09) : 988 - 995