Unraveling Reactionary Care: The Experience of Mother-Caregivers of Adults with Severe Mental Disorders in Catalonia

被引:2
|
作者
Alegre-Agis, Elisa [1 ]
Garcia-Santesmases, Andrea [2 ]
Pie-Balaguer, Asun [3 ]
Martinez-Hernaez, Angel [1 ]
Bekele, Deborah [1 ]
Morales-Saez, Nicolas [1 ]
Serrano-Miguel, Mercedes [1 ,4 ]
机构
[1] Rovira & Virgili Univ, Med Anthropol Res Ctr, Campus Catalunya Avinguda Catalunya 35, Tarragona 43002, Catalonia, Spain
[2] Natl Distance Educ Univ, Dept Social Work, C Calle Obispo Trejo 2, Madrid 28040, Spain
[3] Open Univ Catalonia, Dept Psychol & Educ, Rambla Poblenou 156, Barcelona 08018, Spain
[4] Univ Barcelona, Dept Social Work, Campus Mundet,Passeig Vall DHebron 171, Barcelona 08035, Spain
关键词
Severe mental disorders; Institutional violence; Gender-based violence; Caregivers; Medical Anthropology; AUTONOMOUS MEDICATION; BURDEN; SCHIZOPHRENIA; ILLNESS; MANAGEMENT; FAMILIES; CHILDREN; STIGMA; COST;
D O I
10.1007/s11013-022-09788-z
中图分类号
Q98 [人类学];
学科分类号
030303 ;
摘要
In most Mediterranean countries, people diagnosed with severe mental disorders (SMDs) are typically cared for by the mother, causing a significant burden on people in this family role. Based on a broader mental health participatory action and qualitative research carried out in Catalonia (Spain) of 12 in-depth interviews and 3 focus groups, this article analyses the mother-caregivers' experience in the domestic space. The results show that patients and caregivers are engaged in a relationship of "nested dependencies", which create social isolation. This produces the conditions of "reactionary care", practices that limit the autonomy of those affected and that reproduce forms of disciplinary psychiatric institutions. We conclude that both institutional violence derived from economic rationality and that which stems from the gender mandate feed off each other into the domestic sphere. This research argues for placing care at the center of clinical practice and shows the need to consider the structural forces shaping it.
引用
收藏
页码:790 / 813
页数:24
相关论文
共 50 条
  • [1] Unraveling Reactionary Care: The Experience of Mother-Caregivers of Adults with Severe Mental Disorders in Catalonia
    Elisa Alegre-Agís
    Andrea García-Santesmases
    Asun Pié-Balaguer
    Àngel Martínez-Hernáez
    Deborah Bekele
    Nicolás Morales-Sáez
    Mercedes Serrano-Miguel
    Culture, Medicine, and Psychiatry, 2023, 47 : 790 - 813
  • [2] Health effects of caregiving and coping with severe mental disorders: A caregivers' experience
    Silaule, Olindah
    Adams, Fasloen
    Nkosi, Nokuthula G.
    SOUTH AFRICAN JOURNAL OF PSYCHIATRY, 2024, 30
  • [3] The Impact of National Health Care Reform on Adults With Severe Mental Disorders
    Garfield, Rachel L.
    Zuvekas, Samuel H.
    Lave, Judith R.
    Donohue, Julie M.
    AMERICAN JOURNAL OF PSYCHIATRY, 2011, 168 (05): : 486 - 494
  • [4] Toward Benchmarks for Tertiary Care for Adults With Severe and Persistent Mental Disorders
    Lesage, Alain D.
    Gelinas, Daniel
    Robitaille, David
    Dion, Eric
    Frezza, Diane
    Morissette, Raymond
    CANADIAN JOURNAL OF PSYCHIATRY-REVUE CANADIENNE DE PSYCHIATRIE, 2003, 48 (07): : 485 - 492
  • [5] Experience of Burden of Care and Support Needs of Informal Caregivers of Persons With Severe Mental Disorders in Rural South Africa: A Qualitative Study
    Silaule, Olindah
    Nkosi, Nokuthula G.
    Adams, Fasloen
    MENTAL ILLNESS, 2024, 2024 (01)
  • [6] Community care for adults with severe mental disorders in rural China: A case study
    Li, Ying
    Wing-tak, Ernest Chui
    INTERNATIONAL JOURNAL OF SOCIAL WELFARE, 2016, 25 (03) : 273 - 282
  • [7] Resilience and burden in family caregivers of patients with severe mental disorders
    Masmoudi, R.
    Abid, W.
    Ben Salem, E.
    Ouali, R.
    Feki, I.
    Baati, I.
    Masmoudi, J.
    EUROPEAN PSYCHIATRY, 2024, 67 : S604 - S605
  • [8] Severe Mental Disorders and Quality of Care in Oncology
    Lemogne, C.
    PSYCHO-ONCOLOGIE, 2018, 12 (02) : 93 - 98
  • [9] Continuous care for Persons with Severe mental disorders
    Chandrashekar, H.
    Dhananjaya, S.
    Augusthya, A.
    INDIAN JOURNAL OF PSYCHIATRY, 2025, 67 : S112 - S112
  • [10] Caregivers' Perspectives on Reasonable Accommodation for Persons with Severe Mental Disorders at the Workplace
    Yatheesha, V. H.
    Reddy, Shanivaram K.
    Angothu, Hareesh
    Vranda, Mysore N.
    Raju, Kanmani T.
    Pallerla, Srikanth
    INDIAN JOURNAL OF OCCUPATIONAL AND ENVIRONMENTAL MEDICINE, 2024, 28 (03) : 177 - 181