Bridging the gap: A library-based collaboration to enhance data skills for clinical researchers

被引:2
|
作者
Carson, Matthew B. [1 ]
Gonzales, Sara [1 ]
Shaw, Pamela [1 ]
Schneider, Daniel [2 ,3 ]
Holmes, Kristi [1 ,4 ]
机构
[1] Northwestern Univ, Gaiter Hlth Sci Lib & Learning Ctr, Feinberg Sch Med, 320 E Super St,2-212, Chicago, IL 60611 USA
[2] Northwestern Med, Northwestem Med Enterprise Data Warehouse, Chicago, IL USA
[3] Northwestern Univ, Feinberg Sch Med, Chicago, IL 60611 USA
[4] Northwestern Univ, Feinberg Sch Med, Dept Prevent Med Hlth & Biomed Informat, Chicago, IL 60611 USA
来源
LEARNING HEALTH SYSTEMS | 2023年 / 7卷 / 02期
基金
美国国家卫生研究院;
关键词
clinical data warehouse; data science; learning health system; medical informatics; research data management; workforce development;
D O I
10.1002/lrh2.10339
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Introduction: Enterprise data warehouses (EDWs) serve as foundational infrastructure in a modern learning health system, housing clinical and other system-wide data and making it available for research, strategic, and quality improvement purposes. Building on a longstanding partnership between Northwestern University's Galter Health Sciences Library and the Northwestern Medicine Enterprise Data Warehouse (NMEDW), an end-to-end clinical research data management (cRDM) program was created to enhance clinical data workforce capacity and further expand related library-based services for the campus. Methods: The training program covers topics such as clinical database architecture, clinical coding standards, and translation of research questions into queries for proper data extraction. Here we describe this program, including partners and motivations, technical and social components, integration of FAIR principles into clinical data research workflows, and the long-term implications for this work to serve as a blueprint of best practice workflows for clinical research to support library and EDW partnerships at other institutions. Results: This training program has enhanced the partnership between our institution's health sciences library and clinical data warehouse to provide support services for researchers, resulting in more efficient training workflows. Through instruction on best practices for preserving and sharing outputs, researchers are given the tools to improve the reproducibility and reusability of their work, which has positive effects for the researchers as well as for the university. All training resources have been made publicly available so that those who support this critical need at other institutions can build on our efforts. Conclusions: Library-based partnerships to support training and consultation offer an important vehicle for clinical data science capacity building in learning health systems. The cRDM program launched by Galter Library and the NMEDW is an example of this type of partnership and builds on a strong foundation of past collaboration, expanding the scope of clinical data support services and training on campus.
引用
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页数:7
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