Timing, setting, and content of patient education prior to goal setting for cancer survivors: a scoping review

BackgroundBecause the concepts of goal setting and patient education are intertwined, it is important to understand the details of patient education content for cancer survivors. This study aimed to conduct a comprehensive review of the timing (during or after treatment), setting, and content of patient education provided to cancer survivors prior to setting goals.MethodsA systematic search was conducted across three databases to identify articles on rehabilitation that included patient education, conducted prior to goal setting for cancer survivors. The patient education was then mapped according to the survivors' treatment stage and the 13 elements outlined in the health decision model proposed by Eraker et al.ResultsA review of 21 studies revealed that only four (19.0%) were randomized controlled trials (RCTs). Additionally, education for patients, including goal setting, often considers survivors' feelings and provides adequate information through interactive and repeated communication. However, the satisfaction of survivors (an element of patient education) is not sufficiently reflected in the education provided. During treatment, education more includes personalized materials and evaluations of patient comprehension than after treatment. After treatment, other healthcare professionals are more involved, and social networks are more incorporated than during treatment.ConclusionCurrent patient education research evaluating comprehension by cancer survivors after treatment, multidisciplinary approaches during treatment, and active participation by family members in outpatient or home care, is lacking. Studies that address these gaps should be conducted as RCTs.