Provider Perspectives of Long-Term Follow-Up Care of Patients with Severe Combined Immunodeficiency

被引：0

作者：

Ige, Kelsey ^{[1
]}

Buchbinder, David ^{[2
]}

Izadi, Neema ^{[3
]}

Butte, Manish ^{[4
]}

Chen, Xin-Hua ^{[1
]}

Collins, Cathleen ^{[5
]}

Cowan, Morton ^{[1
]}

Dimitriades, Victoria ^{[6
]}

Franck, Linda ^{[1
]}

Nguyen, Kathy ^{[1
]}

Shah, Ami ^{[7
]}

Puck, Jennifer ^{[1
]}

Smith, Heather ^{[8
]}

Dorsey, Morna ^{[1
]}

机构：

[1] Univ Calif San Francisco, San Francisco, CA USA

[2] Childrens Hosp Orange Cty, Orange, CA USA

[3] Univ Southern Calif, Childrens Hosp Los Angeles, Div Clin Immunol & Allergy, Los Angeles, CA USA

[4] Univ Calif Los Angeles, Div Immunol Allergy & Rheumatol, Dept Pediat, Los Angeles, CA USA

[5] Univ Calif San Diego, San Diego, CA USA

[6] Univ Calif Davis Hlth, Div Pediat Allergy Immunol & Rheumatol, Dept Pediat, Sacramento, CA USA

[7] Stanford Univ, Stanford, CA USA

[8] SCID Angels Life, Lakeland, FL USA

来源：

CLINICAL IMMUNOLOGY | 2024年 / 262卷

关键词：

Severe combined immunodeficiency; Long-term follow-up; Providers; Needs assessment; CalSCID;

D O I：

10.1016/j.clim.2024.110141

中图分类号：

R392 [医学免疫学]; Q939.91 [免疫学];

学科分类号：

100102 ;

摘要：

199

引用

页数：1

共 50 条

[1] Long-term follow-up in patients with severe combined immunodeficiency treated by bone marrow transplantation
Wilhelm Friedrich
Manfred Hönig
Susanna M. Müller
Immunologic Research, 2007, 38 : 165 - 173
[2] Long-term follow-up in patients with severe combined immunodeficiency treated by bone marrow transplantation
Friedrich, Wilhelm
Hoenig, Manfred
Mueller, Susanna M.
IMMUNOLOGIC RESEARCH, 2007, 38 (1-3) : 165 - 173
[3] LONG-TERM FOLLOW-UP CARE OF LARYNGECTOMIZED PATIENTS
REED, GF
JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION, 1961, 175 (11): : 980 - &
[4] Pediatric Patients With Common Variable Immunodeficiency: Long-term Follow-up
Mohammadinejad, P.
Aghamohammadi, A.
Abolhassani, H.
Sadaghiani, M. S.
Abdollahzade, S.
Sadeghi, B.
Soheili, H.
Tavassoli, M.
Fathi, S. M.
Tavakol, M.
Behniafard, N.
Darabi, B.
Pourhamdi, S.
Rezaei, N.
JOURNAL OF INVESTIGATIONAL ALLERGOLOGY AND CLINICAL IMMUNOLOGY, 2012, 22 (03) : 208 - 214
[5] Patients' perspectives of long-term follow-up for localised cutaneous melanoma
Morton, R. L.
Rychetnik, L.
McCaffery, K.
Thompson, J. F.
Irwig, L.
EJSO, 2013, 39 (03): : 297 - 303
[6] LONG-TERM CARE AND LIFETIME FOLLOW-UP
BLEYER, WA
SMITH, RA
GREEN, DM
DELAAT, CA
LAMPKIN, BC
COLTMAN, CA
BRADY, AM
SIMON, M
KRISCHER, JP
MENCK, HR
CANCER, 1993, 71 (07) : 2413 - 2413
[7] Long-term follow-up of patients with severe rheumatic tricuspid stenosis
Roguin, A
Rinkevich, D
Milo, S
Markiewicz, W
Reisner, SA
AMERICAN HEART JOURNAL, 1998, 136 (01) : 103 - 108
[8] PATIENT PERSPECTIVES AND FOLLOW-UP ARRANGEMENTS POST HSCT FOR SEVERE COMBINED IMMUNODEFICIENCY
Lee, Adrian Y. S.
Frith, Katie
Schneider, Lilian
Ziegler, John B.
INTERNAL MEDICINE JOURNAL, 2016, 46 : 26 - 26
[9] A LONG-TERM FOLLOW-UP OF PATIENTS WITH SILICOSIS
BUCCA, C
AVOLIO, G
ROLLA, G
MAINA, A
BUGIANI, M
AROSSA, W
SPINACI, S
CACCIABUE, M
BULLETIN EUROPEEN DE PHYSIOPATHOLOGIE RESPIRATOIRE-CLINICAL RESPIRATORY PHYSIOLOGY, 1985, 21 (01): : A8 - A9
[10] Long-term follow-up of patients with candiduria
S. G. Revankar
M. S. Hasan
V. S. Revankar
J. D. Sobel
European Journal of Clinical Microbiology & Infectious Diseases, 2011, 30 : 137 - 140

← 1 2 3 4 5 →