"People don't have the answers": A qualitative exploration of the experiences of young people with Long COVID

被引：1

作者：

Newlands, Fiona ^{[1
,9
]}

Lewis, Celine ^{[1
,2
]}

d'Oelsnitz, Anais ^{[1
]}

Pereira, Snehal M. Pinto ^{[3
]}

Stephenson, Terence ^{[1
]}

Chalder, Trudie ^{[4
]}

Coughtrey, Anna ^{[1
]}

Dalrymple, Emma ^{[1
]}

Heyman, Isobel ^{[1
]}

Harnden, Anthony ^{[5
]}

Ford, Tamsin ^{[6
]}

Ladhani, Shamez N. ^{[7
,8
]}

Powell, Claire ^{[1
]}

McOwat, Kelsey ^{[7
]}

Bhopal, Rowan ^{[1
]}

Dudley, Jake ^{[1
]}

Kolasinska, Paige ^{[1
]}

Muhid, Mohammed Z. ^{[1
]}

Nugawela, Manjula ^{[1
]}

Rojas, Natalia K. ^{[3
]}

Shittu, Angel ^{[1
]}

Simmons, Ruth ^{[7
]}

Shafran, Roz ^{[1
]}

机构：

[1] UCL Great Ormond St Inst Child Hlth, Populat Policy & Practice Dept, London, England

[2] Great Ormond St Hosp Children NHS Fdn Trust, NHS North Thames Genom Lab Hub, London, England

[3] UCL, Fac Med Sci, Div Surg & Intervent Sci, London, England

[4] Inst Psychiat Psychol & Neurosci, Dept Psychol Med, Kings Coll London, London, England

[5] Univ Oxford, Nuffield Dept Primary Care Hlth Sci, Oxford, England

[6] Univ Cambridge, Dept Psychiat, Cambridge, England

[7] Immunisat Dept, UK Hlth Secur Agcy, London, England

[8] St Georges Univ London, Paediat Infect Dis Res Grp, London, England

[9] UCL, UCL Great Ormond St Inst Child Hlth, Policy & Practice Dept, 30 Guilford St, London WC1E 6BT, England

来源：

CLINICAL CHILD PSYCHOLOGY AND PSYCHIATRY | 2024年 / 29卷 / 03期

关键词：

Children and young people; Long COVID; qualitative; experience; post-COVID condition;

D O I：

10.1177/13591045241252463

中图分类号：

B849 [应用心理学];

学科分类号：

040203 ;

摘要：

Young people living with Long COVID are learning to navigate life with a constellation of poorly understood symptoms. Most qualitative studies on experiences living with Long COVID focus on adult populations. This study aimed to understand the experiences of young people living with Long COVID. Qualitative, semi-structured interviews were conducted (n = 16); 11 young people (aged 13-19) and five parents were recruited from the Children and Young People with Long COVID (CLoCk) study (n = 11) or its patient and public involvement and engagement (PPIE) group (n = 5). Thematic analysis generated four themes: (i) Unravelling Long COVID: Exploring Symptom Journeys and Diagnostic Dilemmas; (ii) Identity Disruption and Adjustment; (iii) Long COVID's Ripple Effect: the impact on Mental Health, Connections, and Education; and (iv) Navigating Long COVID: barriers to support and accessing services. Treatment options were perceived as not widely available or ineffective, emphasising the need for viable and accessible interventions for young people living with Long COVID.

引用

页码：783 / 798

页数：16

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